This is my first post so I hope it makes sense and itsn't too long! I started with pelvic pain and vuvlodynia 6 months ago. I am under the care of the GP and specialists but no reason has been found yet and I am following all the advice in terms of medication and life-style changes*.
I used to do exercise about 4 times a week, usually 5-10 mile walks and HIIT on the treadmill (walking with regular bursts of sprinting), also some weight training, aerobic work-out videos and cycling when I got the chance.
The pelvic pain and vulvodynia have gradually got worse of the last 6 months and I had to reduce the exercise and I eventually had to stop.
Now I find walking for more than 10 minutes to the shops irritates my symptoms.
I am making life-style adjustments to manage and cope with the pain and discomfort. There's a lot of things I can't do right now that I used to do, but at the moment I am particularly missing the regular exercise I used to do. I am 29 and not overweight, but I miss exercising and would like to do something that won't worsen my symptoms.
I am considering trying some sort of stretching based exercise, like yoga or pilates? But I've done neither before.
I have an exercise mat and exercise ball at home (also dumbells and a treadmill). I am happy to buy an exercise DVD if it would help.
As for my symptoms, I have lower constant pelvic pain which feels like a mixture of period pain and cystitis. I have constant valvular pain, with itching and burning sensation in the area.
Currently the itching/burning is the hardest symptom to deal with and control and the symptom which is more easily worsened by exercise. I gingerly walk around the house and have to do house work very slowly. The pain gets particularly bad when travelling, I had to make an unavoidable trip last month and my symptoms became almost unbearable for more than a week after. I think this was a mixture of walking, carrying luggage, sitting in a less than optimal position for a long time, and not being able to cool down.
To reduce the pelvic pain and vulvodynia I wear long skirts with no underwear in the house and sit on a 'Putnam's Sero Pressure' cushion (legs apart, not crossed or together). When I sleep on my side I need a pillow in between my legs. I don't use soap, perfume, wear tight clothes et cetera...
So I am looking for an exercise which I can do from home without having to wear restricting clothes and which doesn't cause intimate friction, or too much bearing down on my pelvis.
Knowing that at the moment 10 minutes of walking can worsen symptoms, I realise I might be asking the impossible, and may just have to wait until my symptoms start to improve before doing exercise.
I am willing to do a certain amount of trial-and-error, trying out different exercises, but I know 15 minutes of "wrong exercise" could put me in bed with pain for the rest of the day. So I thought I'd ask on here to hear about any personal experiences which might help me before I start.
So if anyone else has had any similar experience or any suggestions about what exercises I could start, that would be appreciated.
*In case you're wondering, or it helps answer the question the clinicians have ruled out PID or infection, sexual hormone levels are normal, ultrasound of womb, ovaries, kidneys and bladder are normal, the inside of my bladder by cystoscopy is normal, I drink plenty of water and my bladder fills and empties normally, I avoid all known irritants (caffeine, alcohol, smoking for bladder, or using soap, perfume for vulva...), the doctor at the family planning clinic said my pelvic floor muscles were fine.