fibroscan: hi I got diagnosed in 202... - PBCers Organization

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fibroscan

Daisy2609 profile image
4 Replies

hi

I got diagnosed in 2020 and had I fibroscan that came back f4. I know that means cirrhosis but are there more stages. The only symptoms I had was itching which has now gone. I do have tired spells but nothing too bad and a slightly swollen stomach but that might not be to do with this condition

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Daisy2609 profile image
Daisy2609
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4 Replies
OdinsMom profile image
OdinsMom

Ask for a biopsy. Fibroscans aren't always accurate imho. I was diagnosed at stage 4 in 2007. There are many here that have been stage 4 for a long time but the following by drs becomes different.

Daisy2609 profile image
Daisy2609 in reply to OdinsMom

thankyou

Smokin5520 profile image
Smokin5520 in reply to Daisy2609

I all so an stage F4 on my last blood test. I will discuss further with my Doc.

OdinsMom profile image
OdinsMom

If you are in cirrhosis - my dr & I are not big believers in fibroscan results. You could ask for a biopsy to confirm. That being said there are 4 stages of cirrhosis as well. The first two being compensated and the last two being decompensated. You can stay within them for a very lonng time. Personally I was diagnosed stage 4 PBC stage 2 cirrhosis so no idea how long I'd been there, unable to take urso and still didn't transplant for nearly a decade. I know others that have gone 25 and even 30 years. We're all so different it's hard to give any time frame. Take care of yourself the best you can.

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