PBC Patient Registry: Our PBC Patient... - PBCers Organization

PBCers Organization

1,401 members276 posts

PBC Patient Registry

PBCCarol profile image
1 Reply

Our PBC Patient registry launched last year in November. Those who enrolled back then should be receiving a reminder from CoRDS to review and update their information. CoRDS is celebrating their 10th Anniversary so anyone updating or enrolling for the first time until November 30th will have a chance to win a tee shirt!

I hope you take the time to add your very important health history to the registry. For more info on why to join a registry visit our website pbcers.org/patient-registry/

Written by
PBCCarol profile image
PBCCarol
To view profiles and participate in discussions please or .
1 Reply
PBCCarol profile image
PBCCarol

Direct link to enroll

research.sanfordhealth.org/...

You may also like...

Newly diagnosed with PBC

Newly diagnosed with PBC

is my first post - I was told I had markers for PBC way back in 2017 after a routine blood test...

Anyone with PBC tried Rifampin?

Has anyone with PBC been given Rifampin for sleep and itching? And if so, did it help? Thanks for...

Alcohol and PBC and Urso

New to the group but not PBC

Just a brief something about myself. Diagnosed with PBC stage 4 in 2007. Wasn't able to take urso...