New to Health Unlocked

I’ve been with the yahoo PBC group for years and learned a lot in that time. I’m looking forward to seeing what this group offers. I was diagnosed with PBC/AIH overlap in 2006, stage 3 at that time by biopsy. I’ve had no further testing but now have cirrhosis and although I’ve had about 13 good years, am now having more problems. I think the PBC is still compensated but the AIH is flaring due to becoming intolerant of Azathioprine. I’m hoping to find good advice on this site so I can live at my optimum health level as long as I can. I forgot to say that I am 69 years old.

[PBCCarol]

Welcome! I hope you will find this forum helpful. An online support group only works when people interact. When you read a post show your support by “giving it a heart”, post a simple response or share your experience with the same issue. Any of those will help someone not feel alone on this journey and we have all been there!

[gardenfun]

Dear Mimiof1,

Did you ever consider to ask your hepatologist if you can take Budesonid??

It is cortison special for liver disease and almost without the cortison- typical side- effects.

Take care.

[Hidden in reply to gardenfun]

I was on budesonide for 6 months in the hope that it would be able to replace the prednisone but had to go off it due to it causing extreme edema from head to toe. Once I was taken off it, the edema resolved.