I recently (Feb 22, 2013) tested positive for AMA, 52.7 on a value scale of 0.00-0.20.0 units. My primary physician said it was signs of PBC, he did a liver panel and everything came back normal (TP: 7.7; ALB 4.5, ALP 69, AST 31, ALT 38, TBIL 0.6, DBIL 0.1, IBIL 0.5). He thought that I still had PBC but that we caught it before there was any liver damage. Seen the GI doctor today (Feb 25, 2013) and while he agreed I had a high AMA he said he would not touch me (as far as a liver biopsy) because my liver enzymes are 100% normal. He wants to do my liver panel every 6 months to monitor for any increase in the enzymes. Could I have a false positive AMA or could the high AMA be a sign of something else? Should I be doing more before my enzymes increase? I don't want to wait until I have liver damage and then they says you have PBC when I have already tested positive but have no liver damage? This all began with a rash I am unable to get rid of (July 2012). The rash began around a trauma to my leg which occurred in June 2012 but has since moved to include knees and hands. My other symptoms are: enlarge lymph node in my neck (it comes and goes), constipation (I've never been regular, maybe once a week); stress fracture that will not heal (since May 2012), lack of concentration, easily distracted (I can be in the middle of a sentence and completely forget the word I was getting ready to say).
I just want to know what all this is so I can manage it. I hate being in limbo?
I know itching is symptom of PBC but has anyone had a rash they were unable to get rid of? I recently started using an antifungal cream on the rash and while it is getting rid of it in the places it exists, the rash has started poping up in new places.