urso make me depressed and anxious .i have ... - PBC Foundation
urso make me depressed and anxious .i have been on it for 17 years has anyone ever stoped it.and if so what will happen.
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I was sure I wasn't the only one. I took ursofalk for a few months and it made me depressed. Stopped it. Now my liver enzymes are way up high and my GP told me to take it again.
17 years is a lot of time, this med wasnt studied for that long, maybe nothing will happen
i stopped taking it for three weeks .i felt alot better but my alk phos was238 ast 39 as bad as i hate it i will have to take
Hello nanajo.
Wondering if you yourself have any idea why taking urso is making you feel depressed and anxious.
I could say myself that I've felt depressed in the last 2yrs but it's not the urso that is the actual reason as such (though I never thought I'd be one to have to take a pill daily for what looks like rest of my life).
I think having PBC can cause one to feel anxious and depressed. I know myself in the last 2yrs since diagnose I've gone through periods where I just feel like wanting to be normal again, dispense with the pills and be free. That way I could just get on without thinking about anything as in the way of PBC but I'm reminded of it every night when the itch starts!
I also have found that after the diagnose (that I had already decided myself prior as stumbled across it several months before but hoped I hadn't got it), one day I think I can crack this PBC lark and then the next something comes along (ie thinking about renewal of life insurance later this yr) and you start feeling so deflated again.
I know I've yet to go out to some social function and join in but at the same time handle the fact I won't be even having the one alcoholic drink. That doesn't bother me at all, it is how other people might react as the phrase, "One won't hurt" springs to mind.
I also find some days I'm not quite as with it due to having a bad night with the itch. On my own I'm fine but if I have to be somewhere or even working the one day a wk I do now, can be hit and miss as to how I am feeling on the day.
Apparently it appears that once urso is withdrawn over time the bloods start to elevate once again. My theory is that due to less bile being in the system, it puts more of a strain on our digestion especially handling fats and the liver starts feeling more aggravated.
Out of interest, the other 2 contributors so far to this topic, have you come off urso and tried substituting it with milk thistle to see how your bloods start to be?
yes the drink thing gets to me as well, espesialy when I tell people whats wrong with me and they reply with " but you don't drink much do you" grrrrrrrr, why didn't they call it something else.
Urso makes me feel dreadfull, it affects my stomach, bloats me, gives me a feeling like I am full of bile, so much so that I have been known to go and throw up before I eat to get rid of it, I also get depressed and nasty with it, and a feeling like butterflies in my stomach, last time I went to the gastro He told me to just take one a day at the moment I have upped it to two as like others I want to take it if it helps. I do wish there was more reserch into it though.
I also feel a lot better when I don't take it.
thanks so much for all your input about urso, i guess for now i will try to get back on it .i will see the gastro doc. on mon.see what he says.sure wish there was something else that didn't make us feel so bad. i am sisk of being sick.
I'm 5 days new to this drug. I hate it already, but I appreciate not being the only one.
I am fairly newly diagnosed, but I don't think the Urso is making me depressed. I think the disease can make one depressed more than anything else. My main issue is worrying about whether I will be a responder to the meds. I've only taken Urso for a month and a half, so I can't say yet, since I haven't been tested yet. But that worries me far more than any side effects the meds give me. My hair has been thinning again, and my back hurts, but I don't know if that's the disease of the meds. My main issue with depression is when I have the bad fatigue and can't seem to do anything but go to work, maybe work in my house a bit and come home and rest. I actually went shopping for bra's yesterday and I thought I was such big stuff that I got out and right after work!
Depression is so subjective, there is just no way you can know if its the meds or not.
hi,i was diagnosed 5 years ago. I have gone through a few periods of thinking whether I should take urso or not. On and off few periods. The side affects are the reason of making me fell depressed, as they reminds me of the sickness and hopeless. Why do I need to be on pill for the rest of my life. Later on, was also introduced glutathione accelerator product which also contains milk thistle, Vitamin C. since I have been taking urso with that. I don't get those horrible side affects, like headache, sore joints, server back pain, heavy nose, bitterness tast, ect. my liver function tests results are tracking well.