about The PBC Foundation -
Our telephone helpline is manned 24 hours a day, 365 days a year, however we would hope that non-urgent calls are within (or around) our office hours. The helpline has been used by those suspecting they may have PBC and are looking for assistance in diagnosis, newly diagnosed patients looking for information, carers looking for support, patients whose PBC has progressed or changed, and also family members who have a loved one going through end stage liver disease looking for support and practical information at a most difficult time. The staff manning the helpline are trained, supported, and very experienced. Should you wish to call the helpline, the number is +44 (0)131 556 6811.
This is just one of the many many reasons that I encourage everyone to join The PBC Foundation. It's free. Their passion about educating and supporting people around the world (literally) who have PBC is unparalleled to any organization I've been associated with. I have had the privilege of seeing their CEO Robert Mitchell-Thain in action - always pushing for what is best for the patient - not what's easy or often popular. If you just take the time to browse their website you can see all that this amazing organization has to offer everyone.
pbcfoundation.org/uk