Facebook

[Sachin1234]

How many people here are in Facebook pbc group?

[PBCRobert Partner]

Hi, Sachin.

There are a number of facebook groups of which I am aware. The Foundation's page has almost 3000 followers, which is not as many as the over 5000 members here or even the 10,000 registered (from at least 76 countries) with the Foundation. I know that some members here haven't joined the Foundation yet, for all it is free to do so and joining would give them access to the very latest and some of the best information, self-management techniques and support mechanisms available.

I am aware of the services and the posts on some of the fb groups. Our aim is to ensure that as much information as possible is current, accurate (peer reviewed by our Medical Advisory Board) and absolutely free to those affected by PBC. We know that doesn't happen everywhere but we do try our best.

Robert.

[Sachin1234 in reply to PBCRobert]

I'm very active in Facebook with friends and families tho I don't want to tell or know everyone in fb about my pbc.

I'm happy with this app👍🏼

[gwillistexas in reply to Sachin1234]

Agree

[4pjx__ in reply to Sachin1234]

I follow PBC angels and PBC awareness. I don't usually post anything on there. I usually just read them...then start worrying. 😂

[Sachin1234 in reply to 4pjx__]

I used to get worried a lot reading others issuese now not anymore!

[4pjx__ in reply to Sachin1234]

I guess it's true that each of us are on our own journey. I'm hoping my journey is easier that everybody elses. Haha 😉

[Sachin1234 in reply to 4pjx__]

I wish everyone in this universe have health insurance that can be fair and affordable 🙏🙏🤓

[gwillistexas in reply to Sachin1234]

I agree👍😊