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tomdickharry profile image
12 Replies

Apologies for all of this; I know I ought to be used to

it, but things just don’t change, do they?

I thought that a new GP might be prepared to listen,

but no.....’it’s not PA’ ,’that’s nothing to do with’, and so

on to ‘I haven’t got time to read all of this’, about my

detailed notes and the hospital letter saying my B12

could only be given by injection. It’s not my fault she

was running half an hour late and had other patients to

see.

The craziest of all was ‘if it were due to B12 it would

have shown up on your brain scan’. Even if that were

possible, who knows what condition my brain was in

beforehand, and what else could affect the scan?

Once again, sorry, but I just had to get it of my chest

to anyone who would listen.

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tomdickharry profile image
tomdickharry
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12 Replies
Jillymo profile image
Jillymo

I listened and I heard,

Same story just another day.

Nothing changes we just keep battling on.

How frustrating for you . Grrrrr 🤬

P.s Your Dr is talking out of her rear.

charks profile image
charks

Your doctor sounds like an idiot. Am I the only one who thinks that the standard of doctors is falling? They seem to know nothing and rely completely on blood tests and NSH help sheets for diagnosing complaints. I think I could do just as good a job with those tools. Probably better because I am a speed reader. I love reading and will read anything. I would read any info patients gave me.

tomdickharry profile image
tomdickharry in reply tocharks

I totally agree, and if it weren't for prescriptions and tests I wouldn't go near them.

Sadly, not much I can do alone....

FlipperTD profile image
FlipperTD in reply tocharks

I misread your response and focussed on the word 'tools'. But when I re-read it, I still focussed on the same word... Trying to keep this polite! There's no shortage of them.

Wheat profile image
Wheat

 tomdickharry , how awful and frustrating for you. I thought id heard it all, uninformed twaddle. x

Nackapan profile image
Nackapan

I've learnt to just move on to the next doctor .....Next!There are some who listen with an open mind

Some who have some knowledge

Some wiling to read up .

Others you know in the first minute they will talk at you .

Opinion made before even seeing you

tomdickharry profile image
tomdickharry in reply toNackapan

Trouble is, this is a small area and I'm running short of GPs....

Nackapan profile image
Nackapan in reply totomdickharry

Ask for a referral or second opinion .Doctors csn email for advice.

When s nurse meddled and refused to give me my 2 weekly injection .

A g.p was brought in.

He decided to email a neurologist for a second opinion .

The neurologist despite never meeting me told thst G.p 2 weekly can continue if the 'the patient' is responding.

AKatieD profile image
AKatieD in reply totomdickharry

My trouble exactly, would like to change g.p. but there aren't any that seem any better who would consider me in their catchment

mickeymouse42 profile image
mickeymouse42

If you've got a letter from a hospital saying you need injections that she's not willing to read, it might make sense to contact the GMC.

grumpyold profile image
grumpyold

Did she tell you what signs would be seen in your brain scan, if it was PA?

My reason for asking is, I am having the same trouble as you, being gaslighted by my GP and my brain scan showed white matter lesions, indicative of chronic small vessel disease.

From my research, CSVD is a symptom. I don't suppose she told you exactly what was missing from your brain scan?

I'm currently awaiting a private appointment to see a doctor at a clinic in Cambridge. I've given up trying to get help under the NHS. Scandalous, isn't it.

tomdickharry profile image
tomdickharry

No, the only comment on the brain scan was 'very slight shrinkage due to age'.

I looked up the lesions but saw very little and am still searching for answers. The main question is what else causes them?

I've found....

"Deterioration of the white matter happens with ageing and can be seen on brain scans as white matter lesions (abnormal areas). These appear as bright areas or white matter ‘hyperintensities’ on some brain MRI scans. White matter lesions are one of the most common incidental findings on brain scans. White matter lesions might be referred to as age-related, ‘wear-and-tear’ changes."

So far that's all.

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