One Year Later 😁: Hi Guys I was doing... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members β€’ 23,121 posts

One Year Later 😁

Wwwdot profile image
Wwwdot
β€’27 Replies

Hi Guys

I was doing my journal tonight and I thought I would look at last year same date:

β€œ20/4. V tired and sleepy despite good sleep. Aches extending up arms to shoulders. Shins and feet achy. β€œ

Contrast to today:

Woke early 8.30 ish. Had good sleep. Made kombucha ketchup, did two lots of washing, made birthday cake for mum, Sunday roast for 5. Enjoyed every minute! No symptoms A- injected 4 times or every 4 hours.

And all down to you guys, your support and encouragement as GP support is non-existent and they think I am off my head injecting more than once every 12 weeks!

Who would have cooked Sunday lunch? Where would I be now without you guys?

Thank you all for sharing your recovery paths - it is so helpful to learn from others!

πŸ€—πŸ€—πŸ€—πŸ€—

Written by
Wwwdot profile image
Wwwdot
To view profiles and participate in discussions please or .
27 Replies
β€’
Nackapan profile image
Nackapan

Good to hear .Busy day !

Wwwdot profile image
Wwwdot in reply to Nackapan

Hi Nackapan

Yes it was a busy day and I actually enjoyed it and today I am going to take it a little slower as I know those β€œcan do” days are a blessing not to be taken for granted.

Thank you for your kind words and support over the last year.

πŸ€—πŸ€—πŸ€—

Canadian77 profile image
Canadian77

Very happy for you! Gives others hope

Wwwdot profile image
Wwwdot in reply to Canadian77

Hi Canadian77

Yes last year I was too unwell to bake my mum a birthday cake so to make her an 85th birthday cake was special

πŸ€—πŸ€—πŸ€—

Rexz profile image
Rexz

You are absolutely amazing Wwwdot with too many W's in your name! How wonderful to hear. You've added much sunshine to my day! 🌞

Rexz

Wwwdot profile image
Wwwdot in reply to Rexz

Hi Rexz

Thank you for your kind words and support over the last year.

πŸ€—πŸ€—πŸ€—

Wwwdot profile image
Wwwdot

Hi Rexz

You are one of my sunshines! β™₯️

πŸ€—πŸ€—πŸ€—

Rexz profile image
Rexz in reply to Wwwdot

Errr i'd accept maybe a partial eclipse? 😊

Wwwdot profile image
Wwwdot in reply to Rexz

NO!! Total sunshine πŸ€—πŸ€—πŸ€—πŸ€—

wedgewood profile image
wedgewood

News like yours is really marvellous . A joy to read your message . Very best wishes .

Wwwdot profile image
Wwwdot in reply to wedgewood

Hi Wedgewood

Yesterday was a blessing not to be taken for granted as is all the support and help from this forum.

Thank you for your kind words and support over the last year.

πŸ€—πŸ€—πŸ€—

ClaireWF1346 profile image
ClaireWF1346

Fantastic. And inspiring!

Wwwdot profile image
Wwwdot in reply to ClaireWF1346

Hi ClaireWF1346

This forum is a blessing and it’s positive impact on my life cannot be over emphasised.

πŸ€—πŸ€—πŸ€—

Myoldcat profile image
Myoldcat

Great to hear, encouraging for us and wonderful for yiu x

Wwwdot profile image
Wwwdot in reply to Myoldcat

Hi Myoldcat

Thank you for your kind words and support.

πŸ€—πŸ€—πŸ€—

brenanddave profile image
brenanddave

Yay! Go you..That is awesome, some normality! xx

Wwwdot profile image
Wwwdot in reply to brenanddave

Hi brenanddave

Yes it was a busy day and I will rest today as I don’t want to have a set back!

Thank you for your kind words and support over the last year.

πŸ€—πŸ€—πŸ€—

Bertiepuss profile image
Bertiepuss

So lovely to hear 😍 very pleased for you. Always nice to hear stories of recovery!

Wwwdot profile image
Wwwdot in reply to Bertiepuss

Hi Bertiepus

It was a gift of a day and highly treasured. Both kids home too so it was extra special!

Thank you for your kind words and support.

πŸ€—πŸ€—πŸ€—

Dylfan profile image
Dylfan

Great to hear stories of success...thx

Wwwdot profile image
Wwwdot in reply to Dylfan

Hi Dylfan

Yes it’s been an amazing last year given how it started!

Thank you for your kind words.

πŸ€—πŸ€—πŸ€—

WIZARD6787 profile image
WIZARD6787

Good effort! I am proud of you!

WIZARD6787 profile image
WIZARD6787

>>GP support is non-existent and they think I am off my head injecting more than once every 12 weeks!

In fairness to your GP you are on the other side of a bit odd. Although injecting more to live more fully is not odd at all just because it is uncommon. πŸ™‚

Wwwdot profile image
Wwwdot

Hi Wiz

Thank you and you know how much I value your shared experiences and trials. Your generosity has enabled me to leap frog to a faster recovery path. I shall always be grateful to you and everyone on this forum who are so generous with their support and knowledge.

πŸ€—πŸ€—πŸ€—

MorningMist profile image
MorningMist

What a contrast between this time last year and today! I’m really pleased for you - life is to be lived not just endured. 😊

It is awful though not to have a gp’s support on your journey. I haven’t told mine about self injecting. She nearly fell off her chair when she saw my last b12 result so I refused to discuss it.

Wwwdot profile image
Wwwdot in reply to MorningMist

Hi MorningMist

Thank you. I have written to my GP several times advising of my self treatment and the progress to no avail. I have asked for support with blood tests but to no avail. The last β€œvisual” was eye rolling and being called β€œridiculous”. So I go it alone. Sounds like you are in a similar situation.

I like your life is to be lived - sure is as best we can … and if by doing so we can help others all the more rewarding.

πŸ€—πŸ€—πŸ€—

MorningMist profile image
MorningMist

Yes I am in a similar position and to be honest I feel quite intimidated by the whole thing. The only relevant tests I had were b12 (250 after months of supplementing) gastric parietal cell - negative and celiac screening.

I had private tests done through Blue Horizon which showed raised homocysteine but my gp said she didn’t understand the test and couldn’t interpret the result (!) despite it clearly stating the normal range. πŸ€” After that no one would discuss the matter, so I have no diagnosis.

You may also like...

One for the Functionals :

pushing my luck: Would you at some point consider teaching us how to self-inject safely, as a group

one last question ( hopefully)

I stop with injections until I have seen him in 10 days time, or continue injecting every other...

3yrs later and Active B12 Results

day plus 1 Hydroxycobalamin injection one week before the test, would you be surprised to see...

Homeopathy meet after 2 years

homeopathy. They claimed to cure PA in 3 years and made me to pay lot of amount upfront. I just...

A year on

I have now had 3 weekly B12 injections, then I am to have one every 3 months. I am on iron as well