Suffering since 4 years and now pains are increasing.

[AbdusSaboor]

Hi All, I would like you guys to know that around 4 years back I wrote a post here regarding my b12 + D3 + Calcium deficiency.

History:

I used to have burning in thighs, severe feet pain and was not able to stand merely for 5 mins then. These were my initial diagnosis results:

b12: 160 pg/ml

calcium: 7.6 mgs/dl

D3: 13.8 ng/ml

I connected with a neurologist and went for D3 and b12 shots, and I have been taking b12 (methacobalamin) shots since then as symptoms appear, and everything was going fine till 2021 January. The symptoms used to disappear and i was living a good life without even thinking about this disease.

Then, I tried to get rid of this disease and went for ayurvedic medicines. I was feeling so good, I didn't have pains and was not on shots as well. But suddenly after 3 months I left ayurvedic as well and shifted my house for which I had to do extreme physical work, since then my pains have increased so very much.

Now:

I consulted a doctor in August 2021 again and started a new regime again with alternate day shots, weekly for 2 months and now am on monthly shots. The problem is, I have started to get twitches here and there in my body, in lips, eyes (earlier no twitching was found). The pain in both heels is horrible when I stand, burning around knees. Now, am also starting get little pain in hands and around elbows when ever I get the pain episodes which is worrying me. I continuously feel the palpitations (kind of lubdub or the heart tone) in my feet.

I am currently taking Homeo Vita c 15 and b12 shots monthly.

Any suggestions would be highly appreciated. My life is becoming scary.

Thanks

[mcg-woo]

My best advice is to increase frequency of injections until you get better and find a maintenance dose that keeps symptoms at bay. Sounds like the monthly dose isn’t cutting it for you. Good luck!

[AbdusSaboor in reply to mcg-woo]

Thanks for the reply, I just got relief from major problems today after 6 days of shot (I took this one after a month). What frequency do you suggest for me?

[mcg-woo in reply to AbdusSaboor]

Are you still only getting a monthly injection?

[AbdusSaboor in reply to mcg-woo]

yeah, as of now am getting once monthly. Will change as per suggestions here.

[Nana321]

I believe you need more frequent injections.

[mcg-woo]

If the alternate day followed by weekly injections worked last time, why not try that without cutting back to monthly? My advice would be to stay on weekly injections long term and then if you ever want to try and cut back, try doing it by spacing out one more day at a time. Instead of injecting every 7 days, try 8 and see how you do over a couple of months. The monthly maintenance dose is clearly not working for you.

Now, you just have to figure out what works for you and this is going to take some time. I am on weekly injections and doing well but I really don’t want to risk symptoms resurfacing so I’m staying on weekly injections for now. I have been on a weekly schedule for about a year and a half and I do not have any b12-related symptoms. Good luck!

[AbdusSaboor in reply to mcg-woo]

Oh, the symptoms didn't completely go away those days as well. Anyways let me start weekly regime..

[Nackapan in reply to AbdusSaboor]

It's being on catch up.You were well on s regime then stopped it

Your body will get there again but once you hopefully are back where you were don't change a thing.

Compare it to

A diabetic stopping insulin because they felt well .

It's grossly underestimated the importance of keeping up your b12 .

As mcg-woo suggests any trial to a change do gradually .

Stay positive that you felt well enough to consider stopping injections.

A set back . Hopefully you will back to bring well again soon.

[Luac]

In the nhs, the guidelines for treating neurological symptoms of b12 deficiency state that b12 should be administered every two days until symptoms stop improving.

That took six months for me and now inject on a monthly basis.

We also use hydroxocobalamin b12, which I believe stays in the blood for longer, but I'm not sure.

[Hamayeshguy in reply to Luac]

congratulations. You are so lucky that your symptoms finally are getting abated just in a matter of six months!