A Friend in Need in West Yorks

[Wwwdot]

Hi All

A friend of mine has been abandoned due to Complex Needs.

Admin I hope this is allowed…. On behalf of a forum member I am reaching out as she needs a SI buddy.

Her health is declining rapidly and her GP and NHS have reached the end of the road.

She is in West Yorkshire (wrong side of the hills for some🤣) I know but hey ho we can’t all be perfect!

If you feel you could offer practical support and by helping with injections and in any other way it would be greatly appreciated.

TIA X millions!

🤗🤗🤗

[Narwhal10]

Hi Wwwdot,

Please ask you friend to :-

1) Apply for the notes in hard copy.

2) Do they have all the paraphernalia ?

3) Encourage them to write to their M.P.

The latter is because the NHS are reactive not proactive. They do not look at the bigger, wider picture and long term objectives. So, they wrongly believe that they save money by cutting or stopping injections. But then spend hundreds of thousands on patients who have :-

1) Dementia/Alzheimer’s Disease.

2) Stroke

3) Parkinson’s Disease

Now how many of those patients have actually got P.A./B12D ? Strokes can occur a a consequence of high homocysteine levels.

There are videos of SI on YouTube but if your friend is not technologically minded then there are other ways.

😘🐳

[Sleepybunny]

I'm sorry to read that your friend is struggling.

Perhaps your friend could reach out to PAS for support.

PAS membership

pernicious-anaemia-society....

PAS Contact Details

pernicious-anaemia-society....

Some forum members have been supported by the person who runs B12info.com

She has in past written blog posts about people with B12 deficiency struggling to get adequate treatment.

b12info.com/

There might be some useful info about people to contact in this thread about Patient Safety. It has links for those having difficult health experiences with B12 deficiency.

healthunlocked.com/pasoc/po...

[Wwwdot in reply to Sleepybunny]

Hi Sleepybunny and Narwhal10

Excellent suggestions from you both. The person concerned can see your kind and helpful replies.

Thank you again.

🤗🤗🤗

[Narwhal10 in reply to Wwwdot]

My pleasure Wwwdot,

Feel free to personal message for step by step instructions on point 2 of my first reply.

😘