Ringing in the ear: Positive for IFA. I... - Pernicious Anaemi...

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Ringing in the ear

ReallyWondering profile image
12 Replies

Positive for IFA. I’m been on weekly cyanocobalamin shots for three months. While the tingling in my feet has gotten slightly less, the ringing in my ears seems to be getting worse. Anyone else experiencing this?

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ReallyWondering profile image
ReallyWondering
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12 Replies
Nackapan profile image
Nackapan

Yes my tinnitus started when b12 injections began. I called it the b12 buzz.

ReallyWondering profile image
ReallyWondering in reply toNackapan

How often and how much of which type of B12 are you injecting?

Nackapan profile image
Nackapan in reply toReallyWondering

I'm injecting weekly . Hydroxcobalamin

ReallyWondering profile image
ReallyWondering in reply toNackapan

Is the ringing constant and consistent?

topazrat profile image
topazrat

I woke up with tinnitus one day before my diagnosis and its never gone away, even with frequent injections! It gets much louder when I'm tired or out of sorts.

Wwwdot profile image
Wwwdot

Hi ReallyWondering

Like Nackapan my tinitus began when I started B12 and remains to this day.

Like topazrat I find the tinnitus gets louder (in one or both ears) when I am physically overtired.

It’s a good sign that healing is happening I am advised!

🤗🤗🤗

Swift20 profile image
Swift20

When I switched to daily in Oct it got really loud. It made me wonder if I just stopped hearing it. I’m post concussion since Aug 2020 and it got loud then after hitting my head. Thankfully I can sleep through it but it’s annoying. Never had it so loud. Wonder myself if it will go away.

Orchard33 profile image
Orchard33

The ringing in my ears built over about 5 years and before the PA/B12D diagnosis. It's continued with B12 EOD. It is worse when I'm stressed, which can be caused by just about anything, physical or mental.

Jillymo profile image
Jillymo

I have suffered with tinnitus for many years which drives me to distraction especially at night. I find some nice relaxing music on my mobile which I place on my ear at night.

Before I know it I am sending the 💤 home. 🛌 😴

purpleabc profile image
purpleabc in reply toJillymo

I have tinnitus, started after I had my second cholesteatoma removed in 2000. I used to walk the streets because the traffic helped to mask it, or stand in the kitchen with the kettle boiling on repeat. I had to go to the hospital for a check up and said that it was driving me mad and was sent to Cognitive thought therapy, a 6 week class with others suffering the same. By week 3 i realised that I had not noticed it for a while and it just became better after that. It is still there but i can ignore it, you are trained to think differently about it, it worked ! I admit that when I am tired it is louder but the CTT makes it ok. It is good for anyone struggling because I remember it was traumatic trying to cope.

Jillymo profile image
Jillymo

As a teenager I underwent an eardrum repair and had to have balance retraining. I am going back many years and this sort of surgery was relativly new. It was in later years I developed the tinnitus for which I was given a device to help block out the noise. ( it didn't work )

When I became B12 deficient the ear noises became much worse. I now stick head phones into my mobile and drown out the noises. There is plently of helpful stuff on Utube.

B12life profile image
B12life

I don't have tinnitus. Been injecting daily for 3 years. Sounds horrible. I hope you all find a solution!.

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