New Research on Multiple Sclerosis. - Pernicious Anaemi...

Pernicious Anaemia Society

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New Research on Multiple Sclerosis.

Bellabab profile image
11 Replies

Interesting article about new research for treatments for multiple sclerosis. Very struck by how similar it is to PA and how we can get similar research.

Available on BBC iPlayer as:

'Major moment in MS research' as new Octopus trial starts

My link would not work unfortunately.

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Bellabab profile image
Bellabab
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11 Replies
charks profile image
charks

My friend had MS and died when she was 52 over 20 years ago. I have exactly the same symptoms but have PA. I feel so sorry for her. I think she was misdiagnosed.

Bellabab profile image
Bellabab in reply to charks

Thats very sad. I am pretty sure my eldest brother died at 42 from PA - the post mortem said heart failure which of course we all die from. My paternal Grandfather also died from an unspecified ailment and I can remember how thin he was and unable to stand - suspect PA.

charks profile image
charks in reply to Bellabab

There is so much ignorance about B12D in the medical community. For example my partner's uncle is getting thin and very unsteady on his feet. His doctor has diagnosed him as 'just getting old'. I don't think that's good enough. I'm sure he has B12D.

We puzzled as to how to approach him. He is old school and believes everything the doctor tells him. Luckily we found this newspaper article to back up possible B12D.

express.co.uk/life-style/he...

So he is now taking B12 tablets. We hope it helps.

Technoid profile image
Technoid

In that regard, this diagram often comes up

verywellhealth.com/thmb/_of...

Technoid profile image
Technoid in reply to Technoid

m.youtube.com/watch?v=rq_UI...

talk starts at 1 minute

Technoid profile image
Technoid in reply to Technoid

"'Major moment in MS research' as new Octopus trial starts"

bbc.com/news/health-65135637

Delilahmy profile image
Delilahmy in reply to Technoid

sorry Technoid just seen your link too

Delilahmy profile image
Delilahmy

bbc.co.uk/news/health-65135637

Think this link works …. Hope so

Sleepybunny profile image
Sleepybunny

Hi,

Thanks for posting that.

Link below mentions MS as a possible misdiagnosis for B12 deficiency.

b12deficiency.info/misdiagn...

Click on Multiple Sclerosis and it takes people to an article that mentions conditions with similar symptoms to MS.

Books below mention MS.

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

"Vitamin B12 deficiency in Clinical Practice" (subtitle "Doctor, you gave me my life back!" by Dr Joseph Alexander "Chandy" Kayyalackakom and Hugo Minney PhD

MrJustatip profile image
MrJustatip in reply to Sleepybunny

Hello Sleepy Bunny, glad you checked out those books. Hope you are feeling better too.

Scott-rock profile image
Scott-rock

my sister has MS , I have PA . I keep trying to get her on B12 supplements but she forgets to take them.

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