Acromegaly ? anyone here affected.

[Polo22]

Just spotted on TV programme , woman 1, who had been going to GP for years with lots of symptoms was on Tv talking about a book she had written I think?? wasn't really listening. Someone at home saw her and got in touch to ask if she was having certain health difficulties. The woman 2 at home had Acromegaly and signposted woman 1 to seek help.

She brought it up to GP and now after appropriate treatment is feeling great,

Everything woman 1 described , resonates with myself and is a really common description of peoples experiences on here. Curious,

[Wwwdot]

hi polo

Can you remember date and time and what programme and I will see it’s it’s on some form of catch-up so we can all listen to it? Sounds interesting ..

Thank you for the post!

[Polo22 in reply to Wwwdot]

Hi Yes it was Steph's Packed Lunch channel 4 , yesterday.

[Wwwdot in reply to Polo22]

I will see if I can listen to it later. Thank you.

[Sleepybunny]

NHS link about acromegaly

nhs.uk/conditions/acromegaly/

[Polo22]

so much of this is familiar but don't know if I can approach GP. A lot of it could be B12 deficiency , or poor thyroid management , or general deficiencies but trying to get GP to listen to anything is hard going. Last time they checked my bloods(12/10/22) my T4 was 23.4, TSH 0.18, so they have been chasing me to go in and have the reduce dose talk. I repeated my test few weeks later (31/10/22) T4 was 22.1, TSH 0.51. T3 3.88. At this testing my CRP was 6,60 and cortisol was 552.