Jab #2 didn't go so well!!! - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

Jab #2 didn't go so well!!!

Saoirse2016 profile image
43 Replies

I was noticing the effects wearing off yesterday (Friday), I did think about giving myself a jab then, but since I'd scheduled myself for Saturday, I left it till today.

Got up this morning, and the shakes were terrible...as well as all the other annoying little things that happen when I'm low.

Got my supplies, and readied myself - I remembered to wash my hands this time!

All the activity getting the gear etc made the shakes worse. Had a bit of a problem getting the needle on the syringe, then getting the top of the vial, then drawing the serum into the syringe, and I nicked a vein when I injected. - blood everywhere! Thank goodness for those dinosaur plasters!!

I'm having 3 espressos to calm myself down LOL 🤣🤣🤣

Written by
Saoirse2016 profile image
Saoirse2016
To view profiles and participate in discussions please or .
43 Replies
wedgewood profile image
wedgewood

Well, you persevered, inspite of everything, so well done -Gold star and 10/10 !

Saoirse2016 profile image
Saoirse2016 in reply to wedgewood

Thank you! *polishes star* 😁

Nackapan profile image
Nackapan

Oh dear Hope you're off the ceiling now after these expressos.

Third time lucky !

Or do subcutaneous?

Saoirse2016 profile image
Saoirse2016 in reply to Nackapan

I think I will try sub cut next time!!

Nackapan profile image
Nackapan in reply to Saoirse2016

I use a 30G 1/2 "ing needle. I think easier if you shaky.

I forgot j used to shake ( not nerves)

Do an IM one next when less shaky

Perhaps

J had sn IM one at the surgery o Tuesday .

Always Hope it will last longer .

It didn't

Saoirse2016 profile image
Saoirse2016 in reply to Nackapan

I'll see how I get on for now...I'm not sure what size the needles are, I thought there were two different sizes in the pack, but they're all the same, and I can't see anything on the label that says what size they are.

witchcat43 profile image
witchcat43 in reply to Saoirse2016

What colour are your needles?

Saoirse2016 profile image
Saoirse2016 in reply to witchcat43

They're a sort of off white/pale yellow

witchcat43 profile image
witchcat43 in reply to Saoirse2016

Are they short or long…I’m trying to figure out if you’re using IM or SC needles!

Saoirse2016 profile image
Saoirse2016 in reply to witchcat43

They're about an inch or so long

Midnight_Voice profile image
Midnight_Voice

B12 IM and caffeine IV, I say!

Saoirse2016 profile image
Saoirse2016 in reply to Midnight_Voice

Aye aye captain, caffine dead ahead!!

FlipperTD profile image
FlipperTD

I think there's a book in this story!

Well done.

As for needles, well, I went for my second Covid booster a few months back. Quick stab & squeeze into my arm, and next morning, whoopee! My right leg below the knee is swollen, so much so that it's like a marrow; tight [but not green] so I contacted my medic [that's another story] and advised to measure my calves, and compare. Right fatter than left. [Not forgetting my left had been broken and was still a bit withered] so next stop hospital, echo, blood tests, [nothing to see here folks]! After a few months, with gentle treatment, elevation etc it went down and is now back to normal. I'm now being somewhat circumspect about vaccines, although I think they're a good idea. At no point did it stop me doing stuff.

Keep on stabbing away.

Twaddletop profile image
Twaddletop in reply to FlipperTD

Good Grief FlipperTD, it sounds as if you’re having the same kind of fun as I am. I’m having increased levels of fun with tremors and am starting to think I’ll need to get my better half to stick the needles in. I push the fine needle I use straight in but my other injections use a 90* angle. It’s not easy to do either when you suddenly lose control of your limbs🥴 We’re all entitled to 10/10 for perseverance and I hope you feel much better soon. x

Saoirse2016 profile image
Saoirse2016 in reply to FlipperTD

I had terrible reactions to flu jabs, and caught the flu, three times. Got one flu job felt sick for over a week, arm swollen/massive itchy rash at the injection site, headache, fever...a few weeks later I get hit with the flu and I was out of it for 12 weeks.

Gets the flu jab next winter, same issues after the Jab, a few weeks later blam, out of it with the flu for 8 weeks, recovered, caught the flu again, and out of it for 6 weeks,

I've not had a flu jab since!

Never had a problem with the B12 ones, thankfully!

Sleepybunny profile image
Sleepybunny in reply to Saoirse2016

Hi,

Just wondered if you'd ever been checked for primary immunodeficiencies, Saoirse2016?

Link to UK charity for people with primary and secondary immunodeficiencies

immunodeficiencyuk.org/

Saoirse2016 profile image
Saoirse2016 in reply to Sleepybunny

I live in Ireland, and there's no point in my asking the doctor for a referral or test and then using a "big word" like immunodeficiencies, they have been told and it's been passed on for 30 years that "Saoirse is mentally handicapped" and they believe this with every fibre of their being, and I get no health care, because "oh you read something on the internet did you?!?!"

There's no point in reporting them, I cannot move to another clinic, and no, I cannot get anyone to listen to me...someone did say she'd come with me any time I had an appointment to see if my having a witness changed their attitude, but then she never came with me

Sleepybunny profile image
Sleepybunny in reply to Saoirse2016

I'm so sorry to read that you have had such difficult experiences.

Saoirse2016 profile image
Saoirse2016 in reply to Sleepybunny

Thank you.

I was there today to get my bloods taken, and I mentioned my neuropathy, doc totally blanked me.

They've been told 6 times by 6 different people that I have neuropathy in my feet and it's gotten worse over the years...

Morning

I highly recommend these

Pink Snapit Lite Regular Clinical Ampuole Opener for Medical Professional amzn.eu/d/iXKq3Pt

They make SI so much easier! I wouldn’t be without mine. It literally snaps the top off with a clean break (no shards of glass) and you just eject the top straight into your sharps bin. I ordered another one this morning in case my current one breaks and I can’t get another one! Although I’ve had it for a long time and it works like new still :) it’s a great piece of kit for SI and well worth the money (they used to be £20, so £13 is a bargain!)

Good luck 🤞

Saoirse2016 profile image
Saoirse2016 in reply to

Thanks, I have something coming from Amazon, it should be here Monday, they're already asking me to review it!

Ribblevalleygirl profile image
Ribblevalleygirl in reply to

thanks, I’m sick of cutting my poor thumbs!

Lincsangel1 profile image
Lincsangel1

Hi..It sounds like you need more regular injections.. if it gets to the point where you are starting to feel symptoms return in between injections you're leaving it too long

Ampoule snappers are reduced on amazon.. these type are great ...x

Purple ampoule snapper
Saoirse2016 profile image
Saoirse2016 in reply to Lincsangel1

I've ordered a snapper from Amazon, it's not arrived yet (not post Sat or Sun here)

I've only just started Si, so I'm playing it by ear until I get into a rhythm as to how often to inject

GalDriver profile image
GalDriver

Do you have anyone could do the prep for you? My partner breaks the vial (I can't do it), draws up, changes needles etc and I just jab my thigh. I don't think I could manage to prep it alone.

Saoirse2016 profile image
Saoirse2016 in reply to GalDriver

Nope, I live alone and the last person who I might have called "friend" moved away a year ago - not that she would have helped me any way, she's far too squeamish for that sort of thing. I shouldn't have ignored the symptoms on Friday...my bad!

Lincsangel1 profile image
Lincsangel1 in reply to Saoirse2016

How often are you injecting honey? If you have neurological symptoms you need to inject at least every other day if not daily

I was deficient for many years before diagnosis.. I have lots of neurological symptoms so I inject daily

As we can't absorb B12 naturally we also can't store B12...so therefore after you inject all excess B12 is peed out without 48 hours x

Saoirse2016 profile image
Saoirse2016 in reply to Lincsangel1

This was only second time SI, it seemed to give me a good boost, so I was going to go with once a week. I'd been using an oral spray for the last year, but it wasn't doing much, so I went with SI.

GalDriver profile image
GalDriver in reply to Saoirse2016

Go with the vial snapper then, helps no end. I used to but it was such a malarky holding it all on my lap-tray to do it with 2 young Labradors watching and waiting for the game to start (everything's a game to them. lol)

Saoirse2016 profile image
Saoirse2016 in reply to GalDriver

Ah, I need to get some Labrador puppies then!! :·)

GalDriver profile image
GalDriver in reply to Saoirse2016

I'd recommend it 😆

big boys now 3 years old
GalDriver profile image
GalDriver in reply to GalDriver

But this was when they were tiddlers

pups
Saoirse2016 profile image
Saoirse2016 in reply to GalDriver

Squeeeeeee!!

Saoirse2016 profile image
Saoirse2016 in reply to GalDriver

😍😍

Achesandpains75 profile image
Achesandpains75

GO SUBCUT around your belly button! Done it for 8yrs without a hitch with 1/2inch 30g needles. Go in at 45 deg pinching the skin about 1.5ins from your belly button. Press the syringe SLOWLY to avoid stinging in some areas of your tummy. This method gives you better slow release of B12.👍😄

Saoirse2016 profile image
Saoirse2016 in reply to Achesandpains75

Can I do that in my thigh? I'm already injecting Ozempic in my belly, and I'm not keen on injecting two things in the same general area

Tanglewooddream profile image
Tanglewooddream in reply to Saoirse2016

Yes you can, I alternate sub cut in my thigh and belly fat. Remember to pinch an inch!

Saoirse2016 profile image
Saoirse2016 in reply to Tanglewooddream

Will do, thanks!

sorry to jump in your post, but I’m finding my needles are hurting and bruising, has anyone got an Amazon link to the needles and syringes they are using please?

Lincsangel1 profile image
Lincsangel1 in reply to Ribblevalleygirl

I buy syringes and needles from Medisave.co.uk I order

BD 2ml syringes

BD 30g half inch needles

BD 25g one inch needles

MrJustatip profile image
MrJustatip in reply to Ribblevalleygirl

Why are you injecting? I don't know what your situation is and maybe you for some reason need to inject with needles, but we also went to Dr. for initial loading doses, but now we are using sublingual under the tongue, or patches, tablets, all from a store or Amazon. Can you not use any of these methods to get your B12?

MrJustatip profile image
MrJustatip

Hi, everything I've heard and read about seems to say that when you first start treatment, it often takes 6 months to 1 year to be back to whatever healthy or normal may be. I'm in about the sixth month of my treatment, taking B12, folic acid, etc., and I too wondered if I was getting any better. I've also read that during your treatment, especially the first 6 months you may not feel much of a change in how better you feel. I am still having issues with emotional stuff and breathlessness, etc. My terrible nerve pain seems better though. At times it felt like a severe bout of back spasms. Oh and check your diet, we found that the food we ate contained no vitamins to absorb usual food like corn, peas, bread, milk, etc). Good luck.

Nackapan profile image
Nackapan in reply to MrJustatip

Some / most can't absorb enough from oral b12.I'm one of those with an absorbtion problem so need b12 injections fof maintenence.

If deficiency caused by diet or medication and that's changed

Oral b12 fine and will do thr job.

You may also like...

B12 symptoms returning when treatment going so well

the GP to get this but armed with information from this group we were successful in getting...

6 loading B12 jabs then go back in a year...

results: My results are: 1st Serum vit B12 level: 184 pg/mL {191.0-663.0} 2nd Serum vit B12 level::...

Aaaaargh! They're here! And I've just had my first jab at the nurse's...

Got all the stuff now - ampoules, syringes, wipes, sharps bin .. and I've just had my first...

To jab or not to jab!

struggle to even get down to the surgery. Logic says jab, because even if he does do a serum B12...

since last 3 or so jabs b12 I’m now getting pins needles in fingers!!!

hi all. On jab 3 in a week but it’s giving me pins and needles first thing in morning on...