8 weekly injections

[dolphin66stag]

hi, I have written to gp to try and get injections every 8 weeks instead of every 12 weeks - if I was unsuccessful, what is the best sublingual hydroxacobalam brands and strengths to take - have also heard you can take sublingually when your getting injections every 8 weeks. Thanks guys

[Nackapan]

I would book a telephone consult.

I've had to do this several times or a face to face.

every 8 weeks is very little to ask for and in the guidelines clearly.

they may have not read them!!

3 months stuck in slot of medics minds whatever the symotons or need!!

I've tried sublingual 1000mg tablets on the tongue ( cyanocobalamin)

drops and sprays and high dose b12tablets

the theory is you can passively absorb about 1% of what you take.

They can be very expensive.

I did endless symptom charts to see if helping

I think they do little or nothing for me

Good if you can absorb but then you wouldn't have been prescribed tablets if you can!!

also point out once on injections s your body gets to rely on thus delivery route if you need b12

can't remember the science but made sense at the time

I've not used a hydroxcobalamin sublingual but

a 'Better you' b12 spray methylcobalabin may be worth a try . Delivers 1000mg per spray.

or consider buying b12 to inject

I do this subcutaneously which is effective .

I bought it when my injections were 'threatened ' to be reduced.

Have you had recent bloods taken to check iron ,vit d ,magnesium folate ( if possible) often b12 done at same time.

thyroid.

To make sure nothing else adding to your symptoms.

very disappointing for you . A trial should be agreed at the very least



[dolphin66stag in reply to Nackapan]

thanks for all info - I am booked in for telephone appt on 8th Nov - so see how it goes - have requested 8 weeks due to neurological issues. Have heard of peeps being refused requests due to ignorance of doctors ect - which is disappointing.

[wedgewood]

If I were you , I would consider self-injecting , I was forced to do this when my GP refused to give me 2monthly injections. ( totally numb feet ) It is cheap and easy . If you think you would like to try S,I.. just ask for the information here . An injection costs about £1.60 , everything included .

.

[dolphin66stag in reply to wedgewood]

thanks for info - see how i get on withdoc about the 8 week request.

[charks]

Sublingual B12 didn't work for me. So I switched to diluting the B12 in water and drinking it throughout the day. I noticed an immediate improvement so I stuck with it. I take a vast amount about 15000 mcg daily. That's 3 ml of liquid. I buy 60ml of sublingual B12 for £18 from an online site called iherb. It used to be £11 but has gone up dramatically recently.

[dolphin66stag in reply to charks]

thanks for info- will try sublingually if dont get 8 week injections- maybe in adddition to 8 weekly infections as another p a sister has told me she does this

[Pickle500]

If you don't have PA but an absorption problem in the gut, Sublingual may work for you.

It did for me and I made sure I found a Methylcobalamin and Adeonsylcobalamin mix. You need both to get the proper impact of it. There is no Hydroxocobalamin as sublingual that I know of, and Cyancobalamin which is best to avoid.

You can find a dosage of 3,000mcg to take every day, or even several every day. If you feel better then you'll a lucky one that can absorb it. I think really most is picked up in the stomach and really only a small amount is getting through membranes in the mouth.

You can find them for about £20 on Amazon, make sure they only contain water and B12 otherwise they can contain colours and flavours that can be quite toxic after prolonged use.

[Gambit62 Administrator in reply to Pickle500]

In theory it shouldn't matter which bio-available form of B12 you take - though people do report different experiences.

Passive absorption means that high dose oral and sublinguals can be effective for all absorption problems, including PA but it isn't effective for everyone.

[Technoid in reply to Pickle500]

A hydroxocobalamin sublingual is available : pasioonline.com/b12-hydroxy...

[dolphin66stag in reply to Pickle500]

will definately try sublingually- i have p a

[Motheroflittle]

Designs for Health Trifolamin B12 + Folate Lozenges - 3000mcg B12 (Three Forms)

designsforhealth.com › products › trifolamin

I took Trifolamin and my B12 level was tested at 1200. It raised my level but did not help my symptoms. It may help you though. It has 3 different B12 vitamins + MTHF Methylfolate. Fast dissolve ,orange flavor. I got it on Amazon. I now S.I. instead of sublingual.

I got my B12 from Germany.

[dolphin66stag in reply to Motheroflittle]

trifolamin sounds good- yeah, 8 weekly might not take away neurological stuff or increased b12 levels sublingually, but would boost b12 levels and help with tiredness and fatigue just before your injections- well, thats the plan!

[Linny17]

speak to the nurses.. my injection started at 12 weeks, then spoke to my GP as I felt awful after about 3 years, so he authorised 10 weeks which has been great for about 6 years, but recently I was feeling awful again and just happened to mention to the nurse that I was getting really tired and being very forgetful again.. I was so tired that day that I broke down in tears when speaking to her, she told me that even though she is a nurse practitioner, she can't reduce the intervals between injections, but would speak to GP on my behalf...

About an hour after I had left the practice she called me and said that the 8 week intervals had been authorised..

when you think about it, we see the nurse more often and they are more attuned to whole life medicine..

[dolphin66stag in reply to Linny17]

your right, we will see nurses more due to our p a for injections ect- got telephone appt 8th nov over phone with doc to discuss my 8 weeekly request for injection- so, will see how it goes, if doesnt go well- could bend the nurses ears! 😊