Do any PA sufferers also experience Raynauds phenomenon?
When I first got diagnosed, and was extremely ill, my hands were purple. I'd always had a bit of Raynauds on and off over the years but I noticed it largely cleared with treatment.
Since we're seeing colder weather, my hands aren't purple but my fingers do turn yellow or even go completely numb when I'm outside.
Just seemed too coincidental to have had severe Raynaud's at the time of low b12. So there must be some link to this "unexplained" phenomenon.
I have raynaulds since childhood, and so does 4 of my siblings, all have p.a. . It's really annoying and a real problem in winter, I have notice this year it is really bad, But at the same time I haven't recovered from having b12 stopped during covid in 2020. Have been injecting regularly but still no improvement.
Just looked up raynaulds.... nhs website states it can lead to anaemia..... even lupus etc !
Raynauds is another autoimmune condition , and as we know , an autoimmune condition seldom comes alone. P.A. is autoimmune. …..along with about 100 other ones . I suspect most P.A. patients have an autoimmune “Companion” . Many have , but don’t realise it until it rears its ugly head more seriously . The most common one to accompany P.A. is a thyroid condition.
I used to suffer from Reynaulds quite regularly. It was mainly on my ears and hands. My hands didn't necessarily have to feel cold; they could be in my coat pockets or were gloved but if a half inch of my wrist was exposed that was enough. It hadn't occurred to me that I haven't had it since I started supplementing B12.
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