I have been very ill for a while now(16 months),- pains ruq, stomach, swelling, eyes pain disstrupted vision,high cholesterol, tinnitus, head fuzz driving me crazy, twitching, massive heart palps blood pressure up all time , muscle aches and cracking joints, mood swings and anxiety ++( and even some very dark thoughts when at its worst).
I originally thought it might be liver related as I was a bit heavy on the lager. I have seen Dr after Dr pretty much all telling me Ive got mentall health issues saw a gastro who diagnosed me with errosive gatritis and told me my other symptoms were me being a hyperchondriac and I should see another gastro because 'I'm a pest' so awaiting another refferal but in this time I have had some very extreme head fuzz can't think straight.l, pain palps and some bad thoughts about just ending it but, then saw a vid online about PA and dismissed it as I had already taken b12 supplements and nothing but the video I saw said if you weren't absorbing B12 it needs to be injection or disbursal oral absorb or spray, so I thought what the hell and bought some pills and spray and tried both took a couple of pills let them disperse in mouth and spray a few times went to sleep and woke up and I don't feel cured but the unbearable head fuzz is bearable my eyes don't feel as painful even heart seems not pounding and have felt better than I have in ages well 16 months to be exact. And was just wandering if anyone else has had similar expierance or advice.
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No just had blood counts -high cholesterol, high white counts neuts mainly, high CRP. With constant tachycardia and h BP. Had stool sample 375 caloprectin. Had a private autoimmune mostly the same apart from slightly raised antismooth muscle and albumin.
Thanks👍, me tooGoing to look into getting vit b and d testing I just can't believe how bad I felt for that time and then for last couple of days how much less the brain fog fuzz has lessened I can think clear again🤯.
In my case I think I have experienced RBC macrocytosis ( megaloblastic red blood cells) but no doctor told me what's wrong and what I to do. I had many symptoms dizziness , double vision, blurred vision, nausea, tinnitus, shortness of breath and muscle weakness, umbilical hernia and severly muscle weakness in stomach. In that time I remembered my b12 was low in 2013 and asked doctor to inject B12 after of three times injection my doctor tested B12 and stopped injection. Fir six month I took B12 pills sublingual and timed release. It didn't work that much and then started to inject but after 20 injection I found my symptoms got worsened and I can't even walk. Then I found in low B12 after injection actually all of the damaged nerves signal gets disrupted in order get them repaired but repair required special diet and some exercise along with patience. Keto diet works well since no sugar and less carbo along with lots if fat( saturated and non saturated fat) is required for repair process but should be cautious with constipation son I don't eat cheese either and no caffeine drinks. Still I have lots of neuropathy and due to some issues like some exams and so on I can't inject more than two or three a month and waiting for next year to get back full injection but I don't think I get back to normal soon. I don't think my deficiency is pernicious anemia but highly related to long term continuous stressful life away from home. This injection has lots of temporary side effects and requires some one else help. So I have go back home first and start over. My mist problem us my eyes blurred and double vision. And stomach muscles severe fatigue. Didn't have any other problem and still I don't know dies injection really fix all if my preblems?
Sorry to hear that you’ve been having a miserable time. I also got diagnosed with autoimmune gastritis, almost a year ago, and the consultant just said that I might have B12 issues but no follow-through. They just want me to take corticosteroids to mask the symptoms. I already had coeliac disease (extremely sensitive to trace gluten) and microscopic colitis. I did my own research as I’d been having palpitations and irregular heart beat, brain fog and feelings of not having any energy. Oral B12 helped a tiny bit but I started paying for injections and it was life-changing. I have now acquired the kit for self injecting and a friend will teach me. I’m afraid I’ve always found gastro consultants to be arrogant people who don’t care much and what was said to you is disgraceful. You may want to try paying for a B12 injection or two if you can afford it (google it: they should be injecting hydroxycobalamin). There’s also the idea of getting tested for B12 levels first but you may have high serum B12 if you’ve been supplementing and GPs just don’t seem to understand that this does not mean B12 is necessarily ok. Good luck
Thank you for your advice, and will certainly give links a read and look into trying a b12 injection but as far as I'm aware you can only get these if you have doctors referral or blood tests proving have a condition linked to b12 or folate difficancy,not sure ( advise please) And today after two days of relief and continue with b complex spray feel head fuzz headace tinnitus a bit up.
And as for the gastro consultant comment in my limited experience I think your right especially the arrogant part, a very rough 60 sec ish gastroscopy after he said whatt he said and then he walked out of room after pulling tube out , nurses didn't know what was happening then nurse come back said Dr has left and I'm going to haveto take you through what was found and you will need another refferal.I would have complained but with everything going on and just wanting a diagnosis and to feel better don't want to complicate my case even more.
Hi sleepbunny, I'm in UK have read a few of the links you posted some very interesting points especially the last one about the myths and mis believes of medical community to acknowledge or consider b12, Folate, could be a problem or depend on serum levels to diagnose. Makes me worry about trying to talk to my Dr or when I might get this second refferal weather this possibility will be dismissed out of hand. Have tried looking for paying for injection from another post, closest I can find is superdrug test for b12 and folate by mail and if they find a serum difficant they could then offer a b12 injection. Would be great just to get one or two to see if made a difference at this point with proplems and symps would try anything but b12 injection seems harmless even if someone or myself didn't have a serum difficiancy.
Links below are to forum threads where I left some more detailed replies with lots of B12 info which you may find useful eg more about causes of b12 deficiency, B12 books, B12 websites, B12 articles and a few hints on dealing with unhelpful GPs.
Thanks sleepbunny, Will look through, but have my mind set to try and ask Dr on Monday if given my symptoms neurologic and physical and that I have after 16 months dirrhia after antibs (16months ago),been given diagnosis of stomach and dudenum inflammation errosive gastroenteritis , if he would just start me on injections just to be safe or even if it works if so the reasons why can be sorted latter with gastro, but I really don't hold out much hope just keeping everything crossed, but given how liite interest Drs have had just giving me meds proparnol (heart rate), diazapam(nerve pain 'traped nerves possibly'), that work for days but then back to square one or worse and come off them.
Just hope with some of the info I have gathered he might do it just at the end of my tether with it all. Symps today after a bit more supplementing a little better then yesterday so hope hope hope🤞🤞.
Thanks sleepbunny will see what is said tomorrow then maybe write a letter read what was said in info you sent just to keep it simple and quote the guidelines just got to a point where thinking of waiting for weeks / months? like I am for letters to be responded to is very difficult.TC
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