Not all dietary related. : Hi all , so... - Pernicious Anaemi...

Pernicious Anaemia Society

31,931 members23,068 posts

Not all dietary related.

Darcey14 profile image
5 Replies

Hi all , so in January last year my b12 was 124, done again in march last year it was 150. For many years I have been going in with symptoms like palpitations (had 24 hrs ecg) angular cheilitis, breathlessness extreme fatigue, dizziness, anxiety ow mood and many more. In sep last year things got very bad and I battled for another test, sure enough it was 95 when it should have been 150-1000. She said it was because i didnt eat meat. Looking back that's true but i have always ate eggs, cheese, fortified milk, fortified cereal, normal milk, and took a multivitamen with b12 in. So basically I'm just wondering if this is the reason I'm not feeling a massive difference after my b12 jabs because theres something else going on?

Written by
Darcey14 profile image
Darcey14
To view profiles and participate in discussions please or .
Read more about...
5 Replies
fbirder profile image
fbirder

You had your loading doses 7 months ago and, presumably, have had at least two more injections since then. And you're saying that you're not experiencing an improvement in symptoms.

That could be because your symptoms weren't caused by low B12, or that you need more frequent injections. If you're having them 3 months apart, ask the doc to change that to 2 monthly (as advised in the British National Formulary).

Darcey14 profile image
Darcey14 in reply to fbirder

Dont get me wrong I have felt an improvement but still just feel a bit urgh. The dizziness, palpitations and breathlessness started again about 2 weeks before I was due my last jab which I got last thursday. They're not quite as bad at the minute. Does it normally happen before your due a jab and then take a while for them to have effect? I asked and he said 12 weeks to my next one and then could try 10 weeks

Gambit62 profile image
Gambit62Administrator

Keep a diary of symptoms. Symptoms returning a few weeks before a jab would indicate that frequency needs to be increased

Leils profile image
Leils

Have you considered an overgrowth of yeast or bacteria?

Darcey14 profile image
Darcey14

Hes waiting for a full screen of bloods done. With everything on. That's not till the 18th. I was tested for h pylori 2 years ago because I sometimes get strange hiccups that are like rotten sulphur and makes me very Ill. That initial test came back negative but it can flare up every couple of years. I am keeping track of a couple of things so I'll see if theres a pattern

You may also like...

Average dietary B12 intake

research is to shake out a 10mcg B12 tablet with the natural forms of B12 onto my food at each...

Neurological Symptoms - non dietary B12 deficiency

elevated @ 1300+ and was due to the PE) until last week when my B12 came back at 184 and a...

Mycoplasma related b12 deficiency

supplementing with sublingual b12 (1mg) and my GP asked me to stop taking it, because it looked...

Diet related b12 deficiency

diet related b12 deficiency (I have a vegetarian/vegan diet and knew nothing about b12 until I...

B12 deficiency related to migraines?

migraines can anyone tell are these migraines because of b12 deficiency created havoc in my nervous...