I came off the phone with my GP 20mins ago and had to wait to post as so angry.
I currently cant walk properly have numb fingers and toes and my speech is dreadful forgetting words. I have mini seizures too. I CFS and Functional neurological disorder and functional speech disorder diagnosed on my last admission to hospital. I believe strongly that these are B12 related.
This week I have new symptoms of ringing in my ears neck pain and a chronic headache.
I asked in the most polite way if I could increase my B12 injections to see if the neurological issues would subside.
His response was " well we would need to stand you up and get you to close your eyes see what your balance is like"
He quoted the normal loading dose and 1 injection every three months as they all do.
When I asked him to check his BNF which states anyone with neurological issues can have an injection every other day until symtoms are controlled, he said that would be down to a neurologist.
Now if the neurologist is sayings it's a primary care managed condition And the GP is saying it's a neurology descion where does that leave me as the patient who currently has severe neurological issues?
I will be taking matters into my own hands I was a nurse for 30 years I have always believed in the health service but the care I am recieving at the moment is appalling.
If I can prove that I can make significant headway by SI B12 more often I will take legal action. This I believe might be the only way to get things changed in B12 care.