Has it been this all along?

[MariaMe]

Hi all!

I was diagnosed with pernicious anaemia about ten years ago. I wasn't told much about it except that my levels were low and I needed to get them up. I was given an injection or two and then refused so I got them up with supplements and it was never mentioned again.

I've had years of mysterious symtoms and am currently being treated for lyme diease. I was posting in a support group and a member suggested I get tested for pernicious anaemia.

I started doing some research and I learned that this is an autoimmune disease and is lifelong?

Went back over my medical records but this was never recorded - just that I got injections for low B-12. I had bloods drawn recently and all my levels are normal but I have been going downhill lately.

Now I'm wondering if pernicious anaemia could be the reason I've had years of fatigue, body aches, neurological symptoms, chest pain and breathlessness!

I'm wondering if I should book into my new doctor and ask for a full work up based on this information but I'm kind of doubting myself too...

I would appreciate any experiences or advice on this. I am just new to all this...

[Sleepybunny]

Hi,

I hope you find answers soon.

I wrote a very detailed reply on this thread on the forum recently.

healthunlocked.com/pasoc/po...

Hopefully has some info you'll find helpful. Some info may be UK specific.

[MariaMe in reply to Sleepybunny]

Thank you!

[Nackapan]

Hello.

Seems odd if you were diagnosed with PA it not on your medical notes.

Also the treatment for PA is b12 injections for life.

If your b12 level is withing normal levels did you ask what it is?

Also have you continued all these years with b12 supplements?

If you seeing a new doctor hopefully they will do bloods and check everything.

Ferritin .iron ect.

Trouble is so many symptoms are similar with different conditions.

Definitely worth checking everything out again.

If you going downhill lately perhaos you nor absorbing nutrients as well now??

Hope you get to the bottom of it.

Take care

[MariaMe in reply to Nackapan]

Yes it is strange now that I know about what pernicious anaemia actually is...the only thing in my history is that I was given an injection with another one to be done in 4 weeks . The blood test results are missing too.

I don't know what to think. My last results a couple of weeks ago were all normal. But I definitely don't feel right. I feel anaemic even if the test results don't show it. Which has happened several times before...

[Sleepybunny in reply to MariaMe]

Hi,

Did you get positive test results on tests for lyme disease or have you been diagnosed by symptoms only?

A lot of lyme symptoms overlap with those of B12 deficiency.

UK Lyme Disease charity

lymediseaseaction.org.uk/