Has it been this all along? - Pernicious Anaemi...

Pernicious Anaemia Society

32,627 members23,989 posts

Has it been this all along?

MariaMe profile image
5 Replies

Hi all!

I was diagnosed with pernicious anaemia about ten years ago. I wasn't told much about it except that my levels were low and I needed to get them up. I was given an injection or two and then refused so I got them up with supplements and it was never mentioned again.

I've had years of mysterious symtoms and am currently being treated for lyme diease. I was posting in a support group and a member suggested I get tested for pernicious anaemia.

I started doing some research and I learned that this is an autoimmune disease and is lifelong?

Went back over my medical records but this was never recorded - just that I got injections for low B-12. I had bloods drawn recently and all my levels are normal but I have been going downhill lately.

Now I'm wondering if pernicious anaemia could be the reason I've had years of fatigue, body aches, neurological symptoms, chest pain and breathlessness!

I'm wondering if I should book into my new doctor and ask for a full work up based on this information but I'm kind of doubting myself too...

I would appreciate any experiences or advice on this. I am just new to all this...

Written by
MariaMe profile image
MariaMe
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Sleepybunny profile image
Sleepybunny

Hi,

I hope you find answers soon.

I wrote a very detailed reply on this thread on the forum recently.

healthunlocked.com/pasoc/po...

Hopefully has some info you'll find helpful. Some info may be UK specific.

MariaMe profile image
MariaMe in reply toSleepybunny

Thank you!

Nackapan profile image
Nackapan

Hello.

Seems odd if you were diagnosed with PA it not on your medical notes.

Also the treatment for PA is b12 injections for life.

If your b12 level is withing normal levels did you ask what it is?

Also have you continued all these years with b12 supplements?

If you seeing a new doctor hopefully they will do bloods and check everything.

Ferritin .iron ect.

Trouble is so many symptoms are similar with different conditions.

Definitely worth checking everything out again.

If you going downhill lately perhaos you nor absorbing nutrients as well now??

Hope you get to the bottom of it.

Take care

MariaMe profile image
MariaMe in reply toNackapan

Yes it is strange now that I know about what pernicious anaemia actually is...the only thing in my history is that I was given an injection with another one to be done in 4 weeks . The blood test results are missing too.

I don't know what to think. My last results a couple of weeks ago were all normal. But I definitely don't feel right. I feel anaemic even if the test results don't show it. Which has happened several times before...

Sleepybunny profile image
Sleepybunny in reply toMariaMe

Hi,

Did you get positive test results on tests for lyme disease or have you been diagnosed by symptoms only?

A lot of lyme symptoms overlap with those of B12 deficiency.

UK Lyme Disease charity

lymediseaseaction.org.uk/

Not what you're looking for?

You may also like...

First of all, my Intro/condition/current status

Hi all, I was diagnosed with pernicious anaemia in 2005, but because my B12 level was "high"...

Has anyone had a barium follow through examination?

I have low B12 and was tested multiple times for pernicious anemia, all came back negative. I have...
Ctb567 profile image

Will intrinsic antibodies show up even if b12 normal due to taking b12 tablets?

Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but...
Cathyjw profile image

Hearing Problems

I've recently been diagnosed with pernicious anaemia but I haven't been given a lot of information....

New here and full of questions. Confused and worried.

Hi I'm new here and looking for some advice as a bit confused and worried. After a long time...
Bodley profile image

Moderation team

See all
Foggyme profile image
FoggymeAdministrator
Gambit62 profile image
Gambit62Administrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.