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Can't SI or take sublinguals - started weird sensitive it's / allergic reactions.

Slosh profile image
9 Replies

Hi - does anyone know if the B12 for intravenous applications contains preservatives and additives?

I am currently experiencing an increase in B12 / anaemia symptoms but have not been able to SI since December - due to 2 bad reactions.

I have recently also started all sorts of weird sensitivities to chemicals and foods. I tried sublingual and had such a reaction.

I'm on fairly longterm steroid treatment for another inflammatory autoimmune disease.

Not sure what to do. My doctor is not interested as my last B12 test showed high levels. Also can't explain my 'allergy' reactions.

I have ordered a Medichecks thyroid and active B12 test.

Thanks.

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Slosh
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Nackapan profile image
Nackapan

On an earlier post firebird lists what's in hydroxocobalamin I njections from The Nhs. Hope that's helpful

Cherylclaire profile image
CherylclaireForum Support in reply toNackapan

Do you mean fbirder ? Think it was him.

pvanderaa profile image
pvanderaa

Are you keeping a logbook?

When some people get B12 after being deficient, the backlog of metabolism in the cells in the body switches into high gear and produces lots of byproducts, which the rest of the body may react to but also has to deal with.

New Additional or worsening existing symptoms seems to be what a lot of people describe as allergic reaction. These new symptoms are counterintuitive but their severity seems to correlate with how deficient you were before the jab. They last between a day and up to a week. I cannot tell you which symptoms you will experience because they are unique to your body. Hence the logbook question above.

Reset the logbook to day zero at each jab. And monitor and assess your symptoms the same time each day.

For me, headaches, brain fog, sun light reaction/allergic reactions, aggression, hyperactivity, ravenous hunger, increase in pain all arose in the days after the injection. Very dark urine, excess urine for a day and a huge soft poo about 6 hours after injection were all my reactions.

Some symptoms arise from repair of nerve damage and others from metabolic byproducts. But they repeat almost exactly in the same pattern each jab cycle. Once you can recognize these “good” symptoms and can call them “good” or recognize them as illusions of nerve repair. You can start to sort out the symptoms from the repair from the symptoms of the deficiency and what makes it very confusing is that they are sometimes the same.

The logbook allows you to monitor progress by comparing the severity of the symptoms on day 3 with day 3 in a previous cycle. Realize you are on a roller coaster ride of symptoms once you start on injections. Comparing day 2 to day 3 doesn’t work anymore as things actually look worse sometimes.

Bottom line is you are severely deficient and need more B12. But I’m not medically trained so take it as my experience.

You will also need folic acid, what ever you can tolerate, up to 5 mg max per day. To support metabolism when you get B12.

You will also need a daily multivitamin to replenish the other vitamins, minerals and metals used up by the metabolism.

Record your food and drink into the logbook as well, as you may see reactions to soya, gluten and dairy 24 to 72 hours after ingesting those items. These new “allergies” also produce similar symptoms like soft poo, brain fog, energy issues just to confuse everything as well.

These food type issues have probably been there all along but they are in your favorite foods and you’ve built up a tolerance for them. Getting B12 upsets that balance and highlights these issues as well.

If you suspect a food item, eliminate it completely for two weeks to allow the hepatic loop (small intestine, portal vein, liver, gall bladder, bile, back into the small intestine) to get cleansed. Then reintroduce the suspect food an monitor your symptoms over the next week to confirm any issues.

Once you are able to use the logbook to recognize your pattern of symptoms, you can anticipate a “good” symptom and you regain some control back. This helps eliminate the worry and stress that are also using up your B12. You may find the B12 lasts longer and the deficiency symptoms do not return as quickly.

The goal is to level out the roller coaster ride by getting sufficient B12 often enough to not go into the deficiency symptoms. I’ll repeat that the severity of the “good” symptoms after injection is an indication of how low your B12 got before the injection.

I use weekly cyano injections (max my GP will currently give me) and fill in with daily methyl sublinguals as needed.

Next, Provide a written list of all your symptoms and scores to your GP at each visit. You will be treated as a total hypochondriac like the rest of us have so just realize it is one step in a process of getting the “evidence” your GP needs to give you frequent enough injections.

Slosh profile image
Slosh in reply topvanderaa

Thank you for your advice. My symptoms within 3 minutes are a burning sensation through my vascular system, blurred vision, burning under the skin, tingly mouth and tongue feels swollen, dizziness and then a dry mouth. I've had this from hydroxy injections and Methylcobalamin sublinguals. I have had B12 injections or supplements for over 30 years

Do you think that the above symptoms fall into the 'good symptoms'?

pvanderaa profile image
pvanderaa in reply toSlosh

I get the blurred vision one. But I think it is floaters and vitreous fluid in the eye related and not neurological in the brain. Although, It can get worse before an injection as well.

My burning skin after injections only occurs if I get sunlight after the injection. I use SPF 100 sunscreen to reduce the UV light on my skin.

Dizziness and nausea due to vagus nerve repair for me. More hunger as well. These have pretty much gone after I started self injecting cyano weekly.

Tongue and mouth issues due to different metals and fillings all reacting together. Sometimes also due to the stomach reflux.

Are you more acidic or alkaline in your stomach? My tongue is still my first indication that I need more B12, typically after some stressful event at work.

Never had pain in my vascular system. So don’t know what you are describing.

But yes to all muscle pain and headaches after injections. These are definitely uncomfortable and make it hard to get started but by getting on with the job, I began to realize that they disappear quicker if I think of them as good. It’s a trick on the brain.

Again, the severity of these after injection symptoms is a measure of how deficient I had become before the injection.

When you are initially in pain, you want to just do nothing. Tooth ache for me was the one thing I could not get past and had to take pain killers. It turned out that I had a rotten root on and old root canal and crown and the whole mess had to be extracted.

I used my logbook to figure out my “good” symptoms as they repeated in a pattern after every jab. Recognizing them as “good” is very hard because they are just like the bad ones from the deficiency.

Also realize that the anxiety and worry you are having are just other neurological symptoms and can increase before or after the injection. My GP in the UK wanted to treat my anxiety with an antidepressant and I got every side effect, tinnitus, erectile dysfunction, etc before he finally agreed to increase my hydroxo B12 injections from 3 months to monthly. When I moved to the USA, I used the logbook to convince my GP here to increase from monthly to weekly cyano injections.

So, although I’m not medically trained, my experience says that those, as bad as they sound, could actually be your “good” symptoms.

pvanderaa profile image
pvanderaa in reply toSlosh

How are you self injecting?

Inter muscular (IM)

Subcutaneous (subc)

Intravenous (IV)

Slosh profile image
Slosh in reply topvanderaa

I was doing IM but as I said have not done that since about January do to reactions.

Nackapan profile image
Nackapan

Sorry it's under the heading

Versandapo

2 days ago

Fbirder

Slosh profile image
Slosh in reply toNackapan

Thanks will look

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