very low b12 101 norall range ... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

very low b12 101 norall range is from 180 to 900

weazle74 profile image
18 Replies

i feel short breath a lot of anxiety head aches bloated stomach forgeful and il i aso have hashioto hythyroide but edication made me ill so i stoped pls advice what to take for b12 to feel beter

Written by
weazle74 profile image
weazle74
To view profiles and participate in discussions please or .
Read more about...
18 Replies
sbadd profile image
sbadd

Are you saying you stopped thyroid medication?

weazle74 profile image
weazle74 in reply to sbadd

yes i was feeling very ill

sbadd profile image
sbadd in reply to weazle74

What has doct recommend for your low b12, i was put on 6 loading dose injections over a 2 week period and have they tested for why your levels are low? Also have you advised doct that you have stopped thyroid meds as i have underactive thyroid and medication for this is pretty important to take, im not medically qualified but there are alot of others on this page that should have more advise for you

weazle74 profile image
weazle74 in reply to sbadd

my doctor says that hemoglobin is ok and that i should use orall spray for b12 he makes me desperate as he wants me to take nerve pills and i dont is the only way he thinks i will cure he dont think is promblem i become more ill twice i tried thyroxin and feel very bad i canot hudle the site effects

sbadd profile image
sbadd in reply to weazle74

Sorry to hear sounds like you have double whammy with thyroid and b12, wait for more replies regarding b12 as im only knowledgable on my own experience, ive been on thyroid meds for 3 years before being diagnosed with low b12 around 3 months ago, i was offered loading doses straight away, you should here from others soon with more advise, good luck

weazle74 profile image
weazle74 in reply to sbadd

thank you i am really down and very sad i dont feel my self anymore feeling really depressed and very bad as thyroxin i was hoping to feell beter and i felt worse and that confused me tks for writing it helps

rosyG profile image
rosyG

Think you need vitamin 12 injections- a spray is unlikely to help can you see another doctor?

weazle74 profile image
weazle74 in reply to rosyG

i seen and he said the same take oral spray

rosyG profile image
rosyG in reply to weazle74

I don’t think a spray is the usual way to have it- injections are usual

weazle74 profile image
weazle74 in reply to rosyG

i have normall hemoglobin 13.5

rosyG profile image
rosyG in reply to weazle74

That’s not relevant. If your B12 is low you need injections quite urgently

cleoandpetra profile image
cleoandpetra in reply to rosyG

I can only speak from my experience and testings - when you have a fbc (full blood count) they tested B12 - my print out clearly stated 112 - which was reported in bold - indicative that the doctor should investigate , however the clause in my printout out says "there is no gold standard test for determining B12 deficiency and the final decision for treatment should be on clinical judgement" levels between 120-145 are indeterminate level less that 120 deficiency is more likely. apparently B12 deficiency can be present even if normal (145-914). It also says that the patients symptoms and signs and are the clear indication that "all is not well" which having seen comments on this forum we know what those symptons are. Pregnant women can usually have low B12 (and I am not that) and there are other many other things that can contribute to low B12. I will say now that having had the 5 injections and felt my world was colapsing after them and whilst I am tired -and feeling sick I did not sleep for 5 hours during the day these past few days. I am not ready to run a marathon. So I hope this helps - only you need tell your doctor how you feel if you know your levels. Also if not dealt with with pouring oil on firey waters not dealing with it can be quite serious. My opinion and only my opinion DONT LEAVE IT my doctor didn't she sent me for the injections. keep week kind regards

cleoandpetra profile image
cleoandpetra in reply to cleoandpetra

sorry keep well.!!!

weazle74 profile image
weazle74 in reply to cleoandpetra

i am taking orall spray twice a day 1,200mg is as high as an injection and i watch my diet

sbadd profile image
sbadd

I agree with other that you probably require injections as you would not be feeling well at all with both of these conditions, there is also a thyroid section on this website which may be able to help you, either way both conditions need to be treated quite promptly by the sound of things

Tillpickle profile image
Tillpickle

Perhaps you need a different thyroid medication. Which were you taking?

weazle74 profile image
weazle74 in reply to Tillpickle

euthyrox

Tillpickle profile image
Tillpickle in reply to weazle74

That’s a T4 med. perhaps a natural desiccated thyroid , or T3 only would suit you better. Depends on your labs. A thyroid support page would be able to assist

You may also like...

High B12 circa 900

slipping away. Have made some progress with the B12 spray tis week as well as cooked liver and a...

muscle fasciculations from low b12

I had low b12 and received the b12 injections, currently I now have muscle fasciculations. Has...

Vit D & B12 low/borderline. Ferritin Very low, Iron deficient

low on energy, but have managed a few short runs 3-5km 1 -2 times per week. I have been vegetarian...

Body Aches with Pernicious Anaemia when B12 is running very low

becoming ill or catching a cold only to then realise I am due my B12 jab. I have been having B12...

B12 low end of normal range but symptoms. Dr says not deficient as no anaemia/macrocytosis

mouth, tinnitus and an odd breathless feeling (keep sighing) and have seem to be losing my train of...