I've sent a 7 page letter to the doctors practice

[alison687]

So I have given a 7 page letter to the doctors surgery. Let's see if I get my injections started again. 🤞

[margareta12321]

Good luck Alison.I done something similar and was left distressed and humiliated. By the GP who was clearly furious at me for pointing out I wasn't being treated according to guidelines.I hope you have a better doctor than me.

[alison687 in reply to margareta12321]

How awful. I haven't got 1 specific doctor as my surgery you see a different locum every time. Did you get your injections re-instated?

[margareta12321 in reply to alison687]

I get them 2 monthly now but only because I took a family member with me who is a doctor and was furious at my treatment.The G P became all professional and sweet in her presence and totally backtracked.I self object now and am back to feeling normal.

[Sleepybunny]

Hi,

Good luck with your letter.

GPs might get irritated by a patient writing letters, a couple of mine did, but I gave up worrying because I knew that if I didn't get treatment I was going to deteriorate badly.

If you don't get anywhere with your letter then might be worth looking at......

1) Contacting PAS.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no [phone] answerphone

PAS support groups in UK

pernicious-anaemia-society....

useful source of info on helpful GPs etc.

2) Meeting with Practice Manager at GP surgery

I'd suggest taking a supportive friend or family member who knows about B12 deficiency. Sadly sometimes expressing concerns can get people labelled as a difficult patient. I had unpleasant experiences. It can be very helpful to have a witness........

2) Contacting person who runs B12 Deficiency Info website

b12deficiency.info/

3) CAB NHS Complaints

citizensadvice.org.uk/healt...

CAB can explain process and may be able to put people in touch with supportive organisations.

4) HDA patient care trust

UK charity that offers free second opinions on medical diagnoses and medical treatment.

hdapatientcaretrust.com/

5) Blog post about NHS constitution and B12 injections being stopped.

b12deficiency.info/blog/201...

6) If you're in UK, local MP may be interested if you're not getting NHS treatment you're entitled to.

parliament.uk/mps-lords-and...

7) Some UK people on forum have contacted B12d.org

b12d.org/

If all else fails some people choose to self treat. I did, when I had exhausted every possibility of NHS treatment.

I am not medically trained.

[margareta12321]

Meant inject not object ha ha.

[alison687]

If only I knew one 😁