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Pernicious Anaemia Society
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Dealing with heat

Hi,

I'm currently on day 3 of a holiday to tenerife and I cannot handle the heat. I'm sweaty and it's aggravating my PA symptoms like nothing on earth. I can barely walk, my memory is absolutely rubbish, I'm unbelievably anxious and my whole body is in so much pain. I felt OK before leaving but now I feel horrible. Is it because of my PA? I've not walked more than usual or anything. I feel like I've ruined the money I spent coming here with the way I've been feeling.

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I don't know, but I have the same problems with heat intolerance, and I will get a migraine as well if overheated. If I can get in water frequently and cool off I usually improve. I would keep my hair wet and a wet scarf on my neck and take cooling showers or swim. If your accommodation is cool stay there for the hottest part of the day and go out early or late when it is cooler.

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Sorry you are struggling with heat. I live in Crete so know how it can be.

The thyroid is our thermostat and needs to be healthy to help control body temperature. Hope yours is up to speed. Best to get up early to enjoy the cooler hours and maybe have a gentle walk. Stay out of the sun between 11 & 3 pm unless having a swim.

I think the advice from Frodo is good too. Drink lots of water .... 😎😎

Enjoy your hols and think of all that health giving Vit D 😊

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Hi, thanks for your replies. I get my thyroid checked on a regular basis because of my family history of hypothyroidism and was checked back in June and my doctor said everything was OK. Swimming is the only thing that's even slightly cooling me down so I'm trying to do that as often as I can.

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Do you know which Thyroid test you had back in June ? - there are several - TSH - FT4 - FT3 and the anti-bodies TPO & Tg. Often just the TSH is tested which is only a very small part of the story. It is also a Pituitary hormone and not a thyroid one :-) As you know PA is an auto-immune condition so it could be possible to have Auto-immune Thyroid - Hashimotos - so very important to have those anti-bodies tested.

When your GP says your thyroid is *fine* - he possibly means in range - it is important to know where in the range you are. I have been a member of Thyroid UK here on HU for six years. If I had a pound for every time someone states their GP has told them the results are fine - I would indeed be a very rich woman :-) When we delve deeper we find only the TSH was tested or sometimes the FT4 as well - and we discover the results are far from fine. Sad but true. The diagnosis of Thyroid issues and B12/PA would both win prizes in the GP lack of knowledge competition :-) The TSH tells the Thyroid to produce T4 - a storage hormone. This converts into the ACTIVE hormone T3 - needed in every cell of the body .... Having Hashimotos will ultimately destroy the thyroid activity.

thyroiduk.org

The above link will tell you everything about the thyroid and its complexities. Also there is a heading on the Menu - About Testing - where you will find lots of information about Home Testing - including finger prick tests. This will enable you to have the FULL thyroid Profile tested.

I am not a Medic - just a Hashimotos gal with Crohns and a B12 issue :-)

Enjoy your swimming - I have just had one to cool off :-)

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Thanks for the info. My doctor doesn't reveal what blood tests I go for even if I ask (mainly cause she never sees me in person even when I request to come in and see her). I'll look into it when I get home :)

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You are legally entitled to copies of all your results under the Data Protection Act .... see below :-)

nhs.uk/chq/pages/1309.aspx?...

I am sure it will make interesting reading when you obtain all your results ....

Here in Crete we have to keep all our records - and we can go to any specialist with them if we need to or seek a second opinion .... it does make you feel as if you are in control and very grown up !!

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Like with PA don't believe the Drs when they say your results are OK. I have PA, I'm hypothyroid and going through menopause so really sympathise. I'm off to Tenerife for work next sunday and have to be outside during the hottest part of the day.

Ask the surgery for your blood test results, your TSH should be in the lower part of the range. You may be borderline. I had to plead for an increase in my meds when my level was just inside the range as I felt so ill. Like the others say drink plenty of water it really helps and for me it also helps to stop my hands and feet from swelling too much.

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Also, would it be possible to arrange for more B12 injections? My symptoms abate when I'm loaded up with B12?

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