Yesterday I had, in the words of my 13 year old, an awesome day!
I went to Go Ape and completed the course with my partner and 2 of our children and am so proud.
I'm posting this mainly to give others encouragement as I have been self injecting every other day since mid June and it has changed my life! I still have symptoms and still have problems with my doctor, but I can enjoy things now that I wouldn't have considered myself capable of doing just a few months ago.
I wish my doctor (who, in April, watched me shuffle into her room and cry like a baby when I was denied more B12 after 4 weeks) had been there to watch me climb rope ladders, pull myself along ropes between trees, step off ledges into nothing and glide down the longest and highest zip wires, landing in a giggling heap at the bottom!
Please everyone, keep fighting for what you need, and if you don't get it then do it yourself!
My children have their mum back - most days