Never new wat pa ment

I had my bowel removed aged four and remember having bad habits with my jaw and eye twiches I pulled eyelashes out I even used to chew my sleeves on my coat .I think I had b12 injections from aged 8 and have bin on them ever since I still get eye and jaw twichin .I new I had panemia from a child but never new wat it was ,I was made aware recently that iv got bad anxiety as I apparently go dead fast wen talking and chang e stories in a conversation . I thought the butterfly's I have wer cause I felt giddy as always bin OK in social situations. I found out that wat iv bin like all my life is systems ov my pa ,because iv bin made aware its like a tidle wave my habits r worse I'm warey to speak in case I look wierd to others. I think iv got nerve damage from delayed diagnosis but wen I ask family or iv its in my records I get nowere I feel upset that at 43 iv just found the connection by chance threw searching about anxiety .I'm in a bad place at minuite getin my head rnd it I want try the CBT but think it will b hard as iv always thought its just me who's hyper and have to change a lifetime ov thinking . any advice welcome x

3 Replies

  • Sorry to read that you are in such a bad way - may just be that you need more B12 - though unless you have the financial resources to do it yourself - getting that from medics can be very difficult.

    You could try keeping a diary of your symptoms as you may notice that things are better just after a maintenance shot and then just get worse until the next one.

    It took me the best part of 9 months after being told I had low B12 to work out what it meant and at 52 I now reckon I'd had symptoms for years. Had exactly the same with my GP and anxiety/depression but they actually went when I started treating myself.

  • A lot of your systems do not point towards B12 deficiency, there could be another cause as well as b12. Sounds similar to aspegers syndrome.

  • Considering all you've been through, it sounds like you need a really good gastroenterologist on your team? I have no idea how to help, but just wanted to say good for you- keeping on looking for answers. Sounds like you've had a tough road and most people on here know how it feels not to be 'heard'.

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