Pins and Needles Persist: Hi! Again. I... - Pernicious Anaemi...

Pernicious Anaemia Society

31,894 members23,026 posts

Pins and Needles Persist

MarMcL profile image
6 Replies

Hi! Again. I'm in a bit of a pickle and would love some advice. I started displaying neuro symptoms and started alternate day injections of 1000mcg. My B12 skyrocketed so I cut down to two injections. Symptoms returned so I've begun 0.5mcg hydroxy for the past two days. Some symptoms improved but persistent pins and needles in both feet, shooting up my knees. I'm worried. My supplementation brought my folates up but still have low iron (on capsules). Is the B12 working? I posted blood work in a previous post.

TlA

Written by
MarMcL profile image
MarMcL
To view profiles and participate in discussions please or .
Read more about...
6 Replies
LadyNZ profile image
LadyNZ

I wouldn't worry about the skyrocketing B12 levels. You need to get rid of the symptoms. B12 is not toxic and your body will expel any B12 you don't need. If it was me, I'd keep taking the iron and the B12 injections. Make sure you have regular tests for your iron levels as that can be dangerous if you don't need it. can you buy ferrogradumet (iron) pills? They are a strong dose whereas capsules might be quite weak.

MarMcL profile image
MarMcL in reply to LadyNZ

Thanks. I'm in Canada and currently taking Ferramax. Fingers crossed!

wedgewood profile image
wedgewood

What about tryng Methylcobalamin? It is one step nearer than Hydroxo.to being absorbed . Some people do better on it., and swear it is best for neuro symptoms. If you decide to do that come back here for ways of obtaining it. All the best to you.

MarMcL profile image
MarMcL in reply to wedgewood

Thanks Wedgewood. I'm contemplating that but hydroxy has worked well so far. Its when I cut back on injections, the symptoms returned. Aaaaargh.......;)

annebalto profile image
annebalto

Hi, I have neuropathy of the feet. Started about 5years ago. I have B12 injections every 12 weeks, also type 2 diabetes. it has got worse over the years. Go back to your doctor, would be best.

MarMcL profile image
MarMcL in reply to annebalto

Thanks! Appreciate the advice.

You may also like...

Mild pins and needles..

malnutrition. My B12 was at 173 units at diagnose time,my ferritin level was 3. I see improvement....

Pins and needles all of a sudden?

ok. I’ve been on b12 injections for about 3 years after being diagnosed with a b12 deficiency and a...

Pins & Needles & tingling

neurologist who said my pins & needles and tingling were the wrong sort for it to be caused by B12...

Pins and needles

I have been having pins and needles in hands and feet since my loading injections 2 months ago. I...

Pins and needles worse after exercise

just being diagnosed with B12 deficiency. My symptoms were pins and needles in feet, knees, hands...