Hi everyone - I posted about 2 months ago and found the responses extremely helpful. At that time I was due to see a private Haematologist (Dr S) as GP struggled to believe I needed B12 injections more frequently than 3 monthly. Long story - eventually senior partner agreed to follow Dr S's advice to go to 9 weekly and added 'I have an aunt with PA!' Was so overwhelmed at ease of this that I forgot to ask my list of other questions.... Now have recently asked for blood test results - seem to contain nothing re the range used by the lab or any of the more complex tests people write of here. Dr S did arrange an active B12 test - "it showed a very satisfactory active B12 level of >128.0 pmol/l (any result more than >30.0 pmol/l is regarded as being 'normal')" is what he reported. Can I ask for opinions re the test results?
I am still extremely tired and with many of the symptoms we all know. The 9 weekly cycle kicks in in 4 weeks' time. I have started on multivitamins (Centrum women) and have Pure B12 spray which I spray under the tongue two or three times a day, two sprays each time (says 500mcg in each scoosh) - have been using these now for 5 weeks and notice far clearer head when I use the spray. I do notice, looking back, that although I have a diagnosis of PA, I have never had loading injections - just one injection a week for two weeks - and wonder if my system has been struggling to garner enough B12 all this time (since 2010): all due to lack of joined-upness in the practice re maternity cover for GP.
On advice here, am now pursuing thyroid issues - hypothyroidism for which medication of 25mcg has never changed in the 4.5 years since diagnosis. Have got private appt with Endocrinologist next week.
Any comments on the results would be very welcome.