Does anyone still get constant sympto... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

Does anyone still get constant symptoms after having injections?

lozzie profile image
3 Replies

I was diagnosed with PA over 15 months ago now, however I still get my worst symptom ( which is bad nerve pain) does this happen to anyone else? I keep being told to see how it goes but it's so frustrating as I never get a good nights sleep! Any advice?

Written by
lozzie profile image
lozzie
To view profiles and participate in discussions please or .
3 Replies
Angelam38 profile image
Angelam38

I've been getting injections for over a year now and still have symptoms. Stiff joints, breathless, lethargic, exhausted and hair loss. I feel I'm back to how I was before diagnosis.

Erainy profile image
Erainy in reply to Angelam38

I do. I've been on fortnightly injections for 7 months but when B12 runs out, I get terrible headaches that persists for days unless I have another injection, numbness comes back, pain in my body, tiredness and much more.

johnbarriesmith profile image
johnbarriesmith

It sounds like you have more underlying problems possibly auto immune , nerve pain is usually connected with under active thyroid . Look back in your family for evidence ,things like diabetes , thyroid , gluten intolerance , pancreatitis , adrenal disorder

Not what you're looking for?

You may also like...

Wheres my delivery

Has anyone had trouble with Apohealth? My order status hadn't changed since I ordered it just says...

Vit D

Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...