I am kind of new to the whole blogging thing. I have had some sort of neurological disorder for 6 years now. I was diagnosed in 2006 with Parkinson's disease. In 2008, my diagnosis was taken away along with the medicine that was helping to control my symptoms. I just recently had a movement disorder doctor tell me, " We know two things: 1. This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of parkinsonism. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway. I just went to a doctor for a referral and he wanted to take me off the medicine that is working. I refuse to lie down and let whatever has a hold of me beat me. I just recently completed 48 of the 60 miles for the Susan G. Komen 3-day for the cure. I am tired of hearing that my symptoms are "atypica" and that my symptoms are just due to me being "overly stressed" and that my symptoms are the cause of psychogenic tremors. I am sorry to vent but we are getting to our wits end. Has this happened to anyone else?
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