Our Annual PD Symposium: Saturday was our... - Cure Parkinson's

Cure Parkinson's

25,283 members26,587 posts

Our Annual PD Symposium

wifeofparky profile image
10 Replies

Saturday was our Annual PD Symposium. The main topic of the day was surviving a hospital stay. We all know the best way is to stay out of one but there are times when it is unavoidable. All PD people received the Aware in Care Kits. They are black cases which contain an ID bracelet, Hospital Action Plan, a Medical Alert Card for your wallet, a medication form, PD Fact Sheet to give to your doctors and nurses and have placed in your chart (lists meds you should NEVER take) , PD Reminder slips to hand out, a Thank You Note in case you are lucky enough to find a helpful nurse/MD during your stay and a magnet to hold notices on your bed to remind everyone of your PD. I'd make copies of the Fact Sheet and keep the original for future possible needs.

A psychiatrist discussed Impulsive and Compulsive Behaviors which was very clinical but very informative. I think he was surprised by some of the questions asked during the Q & A period.They were very specific and insightful.

There was a presentation on DBS and information on exercise, dance and advise for caregivers- who often get forgotten.

I don't know if you have these types of programs where you live but I would search them out and attend. I learn something new all the time and it really helps me to help my husband and to cope with my needs as a Caregiver.

Written by
wifeofparky profile image
wifeofparky
To view profiles and participate in discussions please or .
Read more about...
10 Replies
lmbanni profile image
lmbanni

Sounds good. Wish I had joined in!

lmbanni profile image
lmbanni

Was this on the internet?

wifeofparky profile image
wifeofparky

No it was in a meeting room of a local hotel. There were 300 attendees. Each year it gets better attended. This was my 5th symposium.

PatV profile image
PatV

where are you, wifeofparky? we have them here in nYC at a JCC. The last one had a panel on cognitive problems and PD, then lunch, then a choice of the hospital kit talk you mention above or the LSVT technique. The latter were given twice so pwp's and loved ones, etc. could go to both. My daughter, who also has TBi, announced on the way there that she wants a break. I'm very hurt, and trying to understand. Thank goodness I have a lot of support.

wifeofparky profile image
wifeofparky

I'm near Buffalo. They did a segment on LSVT last year. Sorry your daughter has burnout. It happens to all of us at some point. Today I was crying at work because a co-worker's husband who had been very hale and hearty two weeks ago is now under Hospice care and his death is emminent. I was crying for my co-worker because I understand her pain. Every time I leave the house, I wonder what I will come home to find. So far, he has chosen to have his crises when I am here to help.

Dennis profile image
Dennis

Wish I knew how to make contact. ~Dennis

wifeofparky profile image
wifeofparky in reply to Dennis

I sent you a message. Watch your inbox.

Dennis profile image
Dennis

If you live in Tucson I wrote letting "you" know I plan to come down there and

take a look at my house that I am trying to get ready and get it on the market.

PD has been "bad' on me lately and today. Docs can't figure out all that is wrong with me besides PD. Best wishes alll ~~~Dennis

Dennis profile image
Dennis

I think I am not the person who sent you the note on here. Sorry. I replied before but I think I deleted it and not send it. I am not feeling well and go to

doc tomorrow for test. Best wishes ~Dennis

PS I HOPE TO TRAVEL TOTUCSON TO LOOK AT MY HOUSE AND GET IT ON THE MARKET. I WROTE SOMEONE ON HERE AND LET THEM KNOW THAT. That was the "connection". I feel so badly now that I can hardly sit here and type and I think it is much more than PD. I hurt from the xyphoid process to the chest. Don't know what it is. Legs ache so bad it is "driving me crazy."

wifeofparky profile image
wifeofparky

In Buffalo NY. It is held every Spring.

You may also like...

PD Irreversible?

force you to argue it out and think out of the box. Invaluable! Infinite thanks for your help....

Balancing diabetes with PD

this very informative forum that there are PD patients dealing with diabetes also. I value your...

PD Awareness & Advocacy Campaign

If you want to join me in discussing / brainstorming how we can create a PD awareness and advocacy...

IS DYSKINESIA PART OF PD?

Hi friends. Kindly help with your replies.I recently saw my Neurologist,and he wanted me to increase

Your 'teeth and gums' could be CAUSING your PD!

Parkinson’s disease; medication has not been very effective in this case. Prior to...