Yesterday I spent all day at the Parkinson's Clinic. I had to wait 5 months for the appointment, but it came so highly recommended that I didn't care. I started out seeing the nurse for vital signs, history and such. Next was physical therapy, then occupational therapy, then speech therapy, after that the case worker and finally the Doctor. Robert and I both liked the Dr. because he seemed willing to help me in any way he can. He also agreed to take on my Neuromuscular disease and almost seemed excited about reading up on it and learning all he could. Finally it came down to pain and what he could do to help me.
It was explained to me by my Neurologist that taking pain medication long term trains the brain to want and need those drugs on a steady, regular schedule. If it does not receive the pain meds as scheduled it makes you think your body is in extreme pain, and it is in extreme pain it's just not from the part of your body where the pain originated, this pain is coming from your brain. I was informed that I will need to start weaning off the pain meds and start retraining my brain.
I would truly rather not have the pain and I tried to explain that I just wanted to be able to contribute more to my life. The pain meds just take the edge off the pain so that I am not curled up in a ball crying the pain so bad I want to die. He listened very respectfully and then told me again I would have to start weaning off the pain med and start retraining my brain. It all sounds very plausible and I certainly do want to be addicted, but it scares me.
All in all it was a long day but a good day. I liked the way all the departments worked together and they told me they also will keep in contact with my other doctors so that I would have complete comprehensive care.
I think that last line is a lie because I have never seen or heard of that before in the Medical profession!