Wobbly Head

[Mally13]

Hi All,

Diagnosed PD 2006 at age 42.

I have just increased my Levadopa to 200mg because I was get bad spasms in my back, but now I have developed a head wobble especially when I am speaking.

Has anybody else had the spasm's or the wobbly head.

Cheers Mally13

[drew410]

Hi Mally (unlucky 13), Firstly, NO I personally have not experienced what you have but I would suggest that the "wobble" may be induced by either the increased meds or possibly anxiety/worry/stress related issues. I have PD mates who, when worked up for whatever reason, get dyskinesic movements. Under normal circumstances dyskin... is caused by the meds rather than PD. "Because we're all different" (a well worn phrase but true) a finite reason for the issues you have require you and your medics to talk it through and come to a best guess situation. If this sounds negative then I apologise but that is the way it is unfortunately. I wish you well.

[PatV in reply to drew410]

I agree with drew410, the meds give me wavy wild arms and kicky legs when I don't need them. Then I cut back. It's hard to find the balance. But my neuro said it's better to be a little undermedicated!

[bawford]

Hi Mally - Not one to complain at all, and I don't believe I am, but I too have been experiencing this "weebe wobble", dyskinesic increaseing more these past few days. I am on Sinemet and Azlect and dr mentioned it would cause 'some'. But holy smoke!! I can not keep my leg still and my head is feeling like it will fall off my shoulders if the skin wasn't holding it on. I'm calling my dr in Chicago first thing in the morning. I will pray for you to have a good nights of resestful sleep.

I agree that w/a/s/d can cause it to worsen. Gee, I'm worried that I'm stressing out over my anxiety and goodness that is so depressing. A little humor.

[honeycombe3]

bawford, thanks for the quip.

[liljulez]

Hi Mally i often feel my head is just balancing on top of my neck it feels like it may just slip on off ....

[grayland]

Hi Mally:

I often look an feel like a bobblehead doll.

Grayland

[Pelley]

Yeah... I have times I think I should be on the dashboard of a Chicago cab with an air-freshener stuffed inside me......... too

[Mally13 in reply to Pelley]

Yes I know the feeling like one of those nodding dogs people have in cars LOL! you have got to laugh about it or you will cry.

Wish someone had a answer for it

[pennyless]

Hi, Mally,

I have had Parkinson's since 2001, I'm a 'shaker', and on my last increase in my drug regime, I noticed that about an hour after taking my levadopa, my head would nod from side to side, whenever it felt like it, but more profound if I was talking to someone face to face. It is becoming more often as time goes on. I've read & heard if from my neurologist that it is a side effect caused as a result of the heavy amounts of the drugs I am now taking.

As far as I am aware, there is no answer! I guess, unless you stop your medication, which, I definately not advice.

[wozzer]

Hi

I have had the nodding head for about 18 months now, and after telling my neurologst he prescribed upping the Amantadine that I was already on from 2 x 100mg to 3 x 100mg. It hs improved somewhat but as well as that, it has made me feel better off all round. They still call me Noddy down the pub though.

[CJ49]

Sorry to hear you're having a rough go. I agree with Drew....talk to your PD doc about the meds.

[Pelley]

Amantadine is not specifically for PD ya know........

The drug started and continues to be used as a nerve/muscle relaxer given to arrest chronic vomiting etc. in emergency room patients.

[wozzer]

Thanks for the info, I didnt realise that, but with the sinemet and ropinirole it makes a healthy coctail for me. However when I need a pee,I need it pretty

quick, and Ive noticed this since we increased the Amantadine

[ETPDRobbed]

Hello Mally,

I have been diagnosed with PD since 2000, and have been on Carbadopa/Levedopa after a year of trying some if the agonists (Requip and Rasagiline). I take other meds for A-Fib, Osteoarthritis, and a whole host of issues, some´of which ar´normal aging problems of a 72 YO. I mention this because I have always been under the care of a primary Care Dr. PD Specialist and other specialists who evaluate my Med mix carefully. I have never tried to change dosage of any of the meds on my on and all at once because the side affects can be nasty. Carbadopa/Levedopa is very powerful stuff. Increasing your dosage from 25/100 to 25/200 (assuming that is what you did) could cause what you are experiencing. I have never changed dosage with out medical advice and then only by titrating the dosage up or down gradually. I learned that lesson the hard way!

Hope that helps. Hang in there!

[Stvo]

I am 63. My symptoms started in 1995, and I was diagnosed in 1997,

My main problems have been cognition issues in the physical areas bradykineasia and dystonia.

The cognitive issues have been in the ability to concentrate, and to argue, or otherwise handle stress. These occurences set off the physical issues.

I have also found that what I eat directly affects my PD symptoms. protein is a given: the standard advice id to separate protein and carbidopa/levodopa by an hour. Being that I take the Med. every 2 hours, slotting the food in gets tough sometimes. It soon became apparent that almost any protein anytime can kick ff an "episode" od being in an off-state.

Now, I am supposed to save the protein meal till bedtme. Not being a hibernating bear, this is also not the highlight of life.

My model trains have kept me busy, fortunately.