pd plus fibromyalgia

[nadine111]

recently diagnosed with pd. have had fibro and chronic fatigue for more than a dozen years. i'm feeling lost. don't know what way to turn. looking for others that have both pd and fibro. would really like to discuss this with anyone else who has both. it's just overwhelming.....

[Hidden]

I have Parkinson's. My wife has Fibro plus Poly Myalgia Rheumatica. (spelling?)

Supposedly, high dose thiamine hcl may help with Fibro.

My wife gave B1 a half hearted try and found no improvement.

On the other hand, I would be totally disabled, advanced stage Parkinson's, today without B1.

[DelawareGirl in reply to Hidden]

I can find thiamine w/o hcl but have been unable to find thiamine with hcl other than in 100 mg. What is the brand name and where do you purchase it? What is the recommended dosage? Thank you!

[LAJ12345 in reply to DelawareGirl]

Try vitacost. Large capsules and very reasonable especially when they have their numerous sales.

[DelawareGirl in reply to LAJ12345]

Thanks but they don't appear to have HCL. Is that important?

[LAJ12345 in reply to DelawareGirl]

Hi , yes that is the one dr Constantini recommends. It’s under B1

vitacost.com/vitacost-vitam...

I would look into taking Hardy’s daily essential nutrients too . They made a big difference to my husband when he swapped other supplements in it to the one. He also takes extra b1 on top of the Hardy’s.

hardynutritionals.com/produ...

[nadine111 in reply to Hidden]

thank you for taking the time out of what must be a very busy life to respond to me. i hope you and your wife can work together to get through each day knowing you are there for each other.

[faridaro]

Nadine,

Have you looked into Lyme diagnosis?

nationalpainreport.com/it-m...

[nadine111 in reply to faridaro]

i have several times. no lyme's disease. i haven't been feeling very well recently so haven't kept up with responses or lack of to my question re: fibro plus parkinsons. i guess i need to go back to see if missed any other responses. i keep hoping will find others who have both fibro and parkinsons. fibro is so difficult to live with especially when have chronic fatigue but to add parkinsons it's really difficult.

[chartist in reply to nadine111]

Nadine,

According to this study magnesium chloride oil applied topically (mag oil) can be helpful for fibromyalgia and members on this forum have reported it can be helpful to alleviate cramping associated with PD in the legs and arms as well as for constipation. Mag oil is also useful as a topically applied pain reliever and in some instances can be useful for certain types of nerve pain. At least one forum member has reported it can be helpful for increasing range of motion and relieving pain of the shoulders. It is relatively inexpensive and even more economical if you make your own from the dry magnesium chloride flakes mixed with distilled water. Here is a link that you can review :

ncbi.nlm.nih.gov/pubmed/263...

Magnesium can also be helpful in PD in multiple ways and the topically applied mag oil is readily absorbed through the skin and into the body. Good luck!

chartist

[nadine111 in reply to chartist]

thank you for the advise. will check it out. feel like i have to try what is out there with the hope that can slow the progression of pd.

[faridaro in reply to nadine111]

Nadine,

Hope you'll find others on this forum with your symptoms and will get good advice to find some relief. Many have good experience with high dose thiamine - vitamin B1, you can find more information on this subject in numerous posts (especially RoyProp's posts).

Wishing you all the best!

[nadine111 in reply to faridaro]

thank you.