CONTACT FORM FOR DR. COSTANTINI'S HDT PROTOCOL/ Email : [e-mail]

Hello everyone!

This is a basic form that can be used by anyone who is contacting Dr. Costantini to start on his HDT protocol. The idea of this form is that it should give him enough information so that he does not have to send extra emails back and forth to ask more questions of you. I tried to keep the form as simple as possible so that it can be filled out quickly and easily. All you need to do is copy it from below using your mouse and then paste it into your email to Dr. Costantini. Once it is pasted into your email, simply answer the questions and send your email to : [e-mail]

That's it and then Dr. Costantini will respond as soon as possible. I will be adding a link to this page on the "thiamine primer page", so the two easy ways to find this form is to go to the thiamine primer page and click on the proper link or click on my icon ( the chipmunk in the circle). A third way would be to search for " Contact Form" in the search box in the upper right hand corner of the page.

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PRELIMINARY PATIENT INFORMATION

Date :

0. Are you a member of the HealthUnlocked Parkinson's Movement forum?

1. NAME :

2. AGE :

3. WEIGHT :

4. HEIGHT :

4. APPROXIMATE DATE OF DIAGNOSIS WITH PD? :

5. APPROXIMATE DATE OF FIRST SYMPTOMS OF PD? :

6. CURRENT LIST OF ALL MEDICATIONS AND DOSAGE YOU ARE TAKING? :

7. CURRENT LIST OF ALL VITAMINS, SUPPLEMENTS AND ALTERNATIVE TREATMENTS YOU ARE TAKING AND DOSAGES? :

8. CURRENT LIST OF ALL OF YOUR HEALTH ISSUES OR DISEASES?

9. WHAT IS THE CURRENT LENGTH OF YOUR "ON TIMES" AND "OFF TIMES"?

10. CURRENT LIST OF ALL SUBSTANCES THAT YOU ARE ALLERGIC TO?

11. ARE YOUR PD SYMPTOMS WELL CONTROLLED AT THIS TIME?

12. DO YOU CURRENTLY USE A CANE, WALKER OR WHEEL CHAIR ?

13. PLEASE WRITE ANY OTHER INFORMATION THAT YOU FEEL IS RELEVANT TO YOUR CURRENT HEALTH SITUATION HERE :

14. PLACE A PLUS SIGN (+) AFTER EACH ITEM BELOW THAT APPLIES TO YOU.

1. tremor

2. constipation or other digestion issues

3. brain fog

4. insomnia or difficulty falling asleep or staying asleep

5. inability to smell or taste

6. instability when walking

7. dizziness or lightheadedness

8. pain in joints

9. pain in muscles

10. inability to write, use a keyboard or mouse

11. slow movement

12. can't walk

13. muscle cramps

14. dyskinesia

15. freezing

16. anxiety

17. dementia of any type

18. bradykinesia

19. dystonia

20. shuffling

21. depression

22. apathy

23. inability to get up from a seated position without assistance

24. visual problems

25. hallucinations

26. despair

27. dry eyes

28. inability to use either hand or arm effectively

29. inability to focus or concentrate for any length of time

30. foot or leg drag

31. stooped posture

32. problems with swallowing or drinking

33. bladder issues

35. unable to move around in bed without great effort

36. tremor that you feel internally

37. lost facial expression or inability to smile

38. always grabbing on to stationary objects in order to maintain balance

39. forgetfulness

40. drooling / sialorrhea

41. Male

42. Female

[MBAnderson]

Art,

So, I'm guessing Dr. C communicates with about 60 to 70 people from HU, but you would know?

[Hidden in reply to MBAnderson]

He does not have an accurate count on HU forum members because not every member lets him know they are from this forum. I have asked members to mention that they are from this forum when contacting Dr. C, but that is pretty much hit and miss. He has email patients from around the world and there are many HDT users and testers who never even mention they are using or testing it. Even on this forum, people say they are starting HDT and then you never see another post from them. It would be great if everyone kept updating, but that is not the case. Some people find that it doesn't work for them so they feel no need to post about their experience while other people find that it works for them and then they just stop posting or slowly stop posting and then some people find that it helps them and they update regularly. Updates are helpful, but you can't make people do what they don't want to do.

One advantage to this form, well at least for now, is that Dr. C will know who the forum members are if they use the form. I'm sure eventually, non forum members may start using this form also. The form should, at a minimum, reduce the number of emails required per patient which will be good for the patient and Dr. C!

Art

[Grumpy77 in reply to Hidden]

I did post an update several days ago here::

healthunlocked.com/parkinso...

you probably didn't notice, but i will use the form still anyway

[Livin_MY_life in reply to Hidden]

Hi Art,

Happy New Year! I have not provided him with info such as this. Would he like us to complete the form now and provide the information for record keeping? I know the emails must be difficult to catalog.

Jenn

[Hidden in reply to Livin_MY_life]

Send it, It will help him keep track of the forum members and answer any unasked questions he may have, but not have time to ask.....it definitely won't hurt!

Art

[Livin_MY_life in reply to Hidden]

Will do.

[Hidden in reply to Livin_MY_life]

Livin,

Since you are sending it in an email, that will give you a record also of your condition as of the date that you send it. Be sure that you let him know you are already on HDT and that you are sending the form so that he can have the information if he needs it now that the contact form is up on this forum.

Art

[Redginger]

Thank you so much for doing this! My husband might want to consider this in the future so I shall save it.

[Hidden in reply to Redginger]

You may want to save this link also as it has a lot of useful information and links related to HDT :

healthunlocked.com/parkinso...

Art

[Redginger in reply to Hidden]

Thank you!

[Despe]

Happy New Year Art! What about us who have already established communication with Dr. C. and have given the information on the form? Do we need to fill out this form?

Thank you.

PS. Husband has lowered the dose to 100mg a week, 50mg on Mondays and 50mg on Thursdays. Claims he feels good now. He is on the second week on this lower dose and will give it a try for another 2 weeks. We didn't contact Dr. C. for this dose, we initiated it on our own. See how it goes, we will video his pull test, walking and reading and email Dr. C.

[Hidden in reply to Despe]

Happy New Year to the both of you also!

No, the form is just to make it easier for " new testers of HDT " to get started and to make it easier for Dr. Costantini to get enough information in the initial email consult. He said he has already tried it with two patients and it makes it easier and faster to begin the testing process. For people who are already in contact with him, no need to fill it out unless he asks you to. Another advantage with the form is that now he will know who are HU forum members and it will be easier for him to keep track of exactly how you are when you start HDT which should make it easier to track progress or lack of progress a little more accurately.

For me this form pretty much completes what I set out to do on this forum, gather much of the HDT information into one place and make it easier for people to contact Dr. C, so I am glad it is finally up now!

Art

[Despe in reply to Hidden]

Thank you. The form makes it so much easier for patients and Dr. C. to establish communication and therapy protocol.

[Livin_MY_life]

Ok Disregard previous comment.

[Hidden]

I shortened the title of this post to try and make it easier to find by just searching for, "Contact Form". With that search term it seems to come up at or near the top of the search results and seems like as good a way to find it as clicking on my icon for people who want to contact Dr. Costantini to start on his HDT/B-1/Thiamine protocol.

Art

[ildestinoaltrove88]

thank you very much .. I will send an email as soon as possible.

[Hidden in reply to ildestinoaltrove88]

Based on a post on the forum this morning, it appears that Dr. Costantini may not be able to answer emails temporarily until further notice. You can send it, but it may or may not get answered for a while.

If you have any questions, just post them and they will get answered.

Art

[Despe in reply to Hidden]

My husband is working on the new video to send to Dr. C. Please direct me to this post you're referring to, Art. Thanks.

[Hidden in reply to Despe]

healthunlocked.com/parkinso...

[Despe in reply to Hidden]

Thanks, Art. I'd rather believe that he took a little break rather than having health problems. Don't we all need a little break?

[Hidden in reply to Despe]

Yes, definitely, we all deserve a break today!

Art

[nldr18]

Hello Easilly,

Thought you might be the best person to ask the following question. I was in a health food store yesterday to purchase a lower dose of B1 and a very knowledgeable man who advises in the vitamin department suggested that instead I try benfotiamine. He said that it was better absorption I believe. I haven’t seen any posts that mentioned it and was wondering whether Dr. Constantini has addressed this option or whether you have seen any information about it.

Thx.

Natasha

[Hidden in reply to nldr18]

Natasha,

The guy at the store may be correct, but for your "specific purpose (PD)" you will have to stick with what Dr. Costantini has devised for his protocol because the benfotiamine form will not work the same. It is poorly water soluble and could potentially build up in the fat tissues at the dosage required for the HDT protocol and that would be something that you definitely don't want.

Please read the HDT FAQ page as this common question and 57 other questions are answered there.

healthunlocked.com/parkinso...

If you ever need to find the FAQ page or any of the other pages I have written related to HDT, just click on my icon and select the page you want to read.

Art

[nldr18]

Hello Art, thanks for your response. I hope this is not a duplicate message. I answered you but it seems to have disappeared, so once again thanks for all you do to share Dr. C’s protocol and our experiences with it.

I haven’t seen any recent postings about how his health is, and thought perhaps you might be aware. My thoughts and prayers are with him, but I hope you have good news.

Natasha

[Hidden in reply to nldr18]

Natasha,

Sorry, there are no new updates since Dr. Marco Colangeli posted his last update into the following thread. You will have to scroll down through the replies to find his latest update.

healthunlocked.com/parkinso...

Art

[nldr18 in reply to Hidden]

Thx again.

Natasha

[Hidden in reply to nldr18]

nldr18,

If you select to ""Follow post"" when you use this link to Marco's post, you will be notified by the HU Forum whenever Marco gives an update about how Dr Costantini's recovery is going. Currently that post has all of the information we have regarding Dr Costantini's recovery and that is where Marco has told us he will update whenever he has news. His last update was about 8 days ago and Roy reposted it a few days ago for anyone who might have missed Marco's post.

healthunlocked.com/parkinso...

Once you select to "follow post" HU will send you a notification via the small bell at the top of each HU page. The bell will change from white to red to let you know that you have a notification pending.

Art