When I was researching alternative treatments for my mom who was diagnosed 20 years ago, there was scant information. I started experiencing symptoms two years ago and have been impacted and inspired by PwP who’ve begun self-researching and self-experimenting. Because of this and because information can get scattered across the internet, I created a website [subvertingparkinsons.com ] to compile and collect holistic and alternative PD resources in one place—emphasizing firsthand accounts of PwP, who through self-experimentation have slowed symptoms or increased well-being and then created websites to share their experiences.
If there’s interest, I’m looking at creating a centralized database where PwP can self-report/and update their own experiences with alternative treatments so tracking doesn’t get buried in discussion boards and blogs. If you’d like to see such a database, please consider taking this survey [surveymonkey.com/r/DHBVSZ5 ] where you can input what symptoms and treatments (i.e. keto diet, thiamine, etc) you’d like to see tracked.
I highlighted (non-commercial) blogs and websites and have asked permission when linking to someone’s post on discussion boards. The site is still under construction. It isn’t showing up in searches, so there’s time to make changes. Please feel free to message me with any suggestions.
Though I’m shy about posting, I’ve still been helped by the supportive words and information shared on Health Unlocked.