Distraction from Parkinson's Tremors

[Coot18]

My mind is "somewhere else", maybe I'm daydreaming

Then I become aware I have no tremors

Suddenly, the tremors start

I try to stop them

They get worse

Until I get distracted again into a day dream

I'm trying to learn to let the distraction happen

rather than make them happen

Meditation helps

Dr. Hadlock talks about reducing anxiety

pdrecovery.org/

Suggestions?

Anyone else?

[dentonpark]

60,m,diag 3yrs,no meds,mild tremor....does the same as you describe

[Coot18 in reply to dentonpark]

So, have you figured out how to daydream without the conscious intention to day dream?

[park_bear]

Mine are the opposite - start when I am not paying attention.

[Coot18 in reply to park_bear]

Yes, I also have instances where I am say talking on the phone

engaged in a conversation

then I notice the tremors start

but I can't "make" them stop

[park_bear in reply to Coot18]

Try doing something with that hand, even just changing position a little.

[Grumpy77 in reply to park_bear]

You probably misunderstand the term 'resting tremor'.

Tensed body/mind, stress, nerves, anxiety and intense focus can all trigger tremors, which may not necessarily cease when you move the hand

[Coot18 in reply to park_bear]

That works fine during the day when I'm awake. When I'm trying to relax and go to sleep I don't really want to do anything

[Kevin51]

try CBD oil - if it is legal in your country; lots of links on this site.

[Coot18 in reply to Kevin51]

I use CBD lotion it helps to some degree

as does 10:1 CBD/THC candy

helps with distraction

I have tried CBD w/o sinemet, and sinemet w/o CBD

seem to need both

still at three daily 25/100 sinemet after six years

[ion_ion]

I have the same situation. Based on it two doctors told me I do not have PD, but postural ET. If my focus is away I'm normal.

[lempa_nik]

Coot18, Your experience makes a lot of sense to me. It sounds like your "daydreaming" state with "the mind somewhere else" simulates the sleeping state, where the mind detaches its attention from the outer senses. And we all know that tremors stop when we fall asleep. On several occasions, I've noticed that my tremors stopped completely for an hour or two when I got deeply engrossed in my mental work. (This couldn't be credited to my meds, which had long since expired in my body.) Advanced meditators/adepts can perhaps go into this detached, tremor-free state--samadhi?--at will but the rest of us have to depend on mental happenstance.

[christos_k]

It reminds me of one of my clients. He came to me with the question "why can't I lose control"? My answer was "because you try to"

[Coot18 in reply to christos_k]

Great discussion going here

Let me add another link to the thread chain

If you have practiced astral travel or lucid dreaming

you are aware of the technique of keeping your consciousness

in the "middle state" between awake and asleep

I am still attempting to answer the question

"Why did God give me

the gift of Parkinson's disease?"

You all are helping me do that.

Thanks for the inspiration

the harder we try to understand

the more we appreciate

the beauty of something

we will never understand

Dave

Love > hate

[AmyLindy in reply to christos_k]

Truth!

[Erniediaz1018]

Nice pic thanks for sharing. Mucuna pruriens seems to ease tremors for me, it doesn't completely stop them but helps calm them.

[bcowart in reply to Erniediaz1018]

Curious how much mucuna you take? Do you take Comtam along with it to get across the blood brain barrier, or just add it into the mix so that the carbidopa built into your sinemet? I have tried several teaspoons of it in a glass of water in the past, with no noticeable reductions of tremor, bradykinesia, etc. I was really hoping it was going to help.

I’m a 40+ year meditator (TM) and have noticed that if I am not fully OFF at the time, after a few minutes of meditation the tremors often will stop. It’s so strange to notice my tremors get quieter and quieter and then stop. But so far, if I am fully OFF, meditation does not do the trick. Toes, feet, thighs, calves and right arm/hand as well as inner vibration feeling will drive me to distraction if I don’t get up and do engage in some physical activity.

[Erniediaz1018 in reply to bcowart]

I practiced meditation in the past for about 12 years was very fortunate to live near a residence for monks so I had personal training which is highly recommended. But I am now a SDA who has grandly benefited from eastern traditional meditation I just don't practice with all the mysticism attached to it. Back to the mucuna. I buy from nutrivitashop.com/l-dopa-10...

in the US which sells 100% l-dopa. I take only a 1/4 tsp twice a day otherwise its too much on the digestive system for me. And I just mix in a bit of orange juice or something similar. I've had experiences where I ate right behind it and felt like I was going to die, I think it's the protein you can't mix it with. But I've done alot of trial and error. I'm also 49 I've had symptoms for about 4-5 years that I've noticed but was recently diagnosed. I'm a vegan most of the time when I don't eat a slice of pizza or have breakfast at a diner with my family and opt for eggs and homefries. I also use about 15 powdered herb extracts every day. Check my other posts you'll get more info if not don't hesitate to ask. That's what were here for to help each other in this cause. God bless

[Coot18 in reply to Erniediaz1018]

so Do I want powdered seeds? leaves? cowhand or velvet bean mucuna?

Interesting the issue with protein in gut at same time

also that warning with sinemet

Sinemet issue has something to do with protein using up the enzymes needed for transfer to bloodstream as I understand it. Always thought problem was simply with lack of transfer. Never heard of severe pain Erniediaz reported when mixing.

[Erniediaz1018 in reply to Coot18]

Powdered seed

[Celtis]

I find I can calm my tremors down almost completely if I have the determination to get into a proper meditation. That lasts for a while afterwards. But you can't be doing that all day.

What was interesting to me was

[Coot18 in reply to Celtis]

determination to meditate

is that a contradiction?

I have divided my therapies into

awake and trying to sleep

if tremors come while awake

move around

squeeze stress ball with hand

do exercises

stand on one foot for balance (really helped me)

if while trying to nap

relax, meditate

Ldopa, cannabis help

Love > hate

[Celtis]

Sorry I didn't mean to cut that short. What was interesting to me was that when I was having an Alexander Technique lesson the same thing happened. I think AT is a way of carrying meditation into your daily activities. And of course AT is good for PD.

I haven't been good at maintaining it though. And I am quite newly diagnosed - 18 months.

I wonder if other people have had a similar experience.

[Coot18 in reply to Celtis]

Great discussion going here

Let me add another link to the thread chain

If you have practiced astral travel or lucid dreaming

you are aware of the technique of keeping your consciousness

in the "middle state" between awake and asleep

I am still attempting to answer the question

"Why did God give me

the gift of Parkinson's disease?"

You all are helping me do that.

Thanks for the inspiration

the harder we try to understand

the more we appreciate

the beauty of something

we will never understand

Dave

Love > hate

[Celtis in reply to Coot18]

Interesting idea to follow up on. Aiming for that kind of internal stillness which is needed for lucid dreams and for meditation - and achieving it sometimes - stops the depression that thinking too much about pd can induce.

[Coot18 in reply to Celtis]

Meditation, Alexander Technique, One with the Universe, Mellow out, Reduce anxiety, end fight or flight state, end fear of safety and of dying,

We are in a rowboat on the Sea of Life. The movement of the boat is affected by God's water and wind currents. God gave us an oar. With our free will, we decide when to row and when to float.

PD is God's gift, not God's curse. A wave that came our way. When do we row with medications and therapies? When do we relax and float?

Love > hate

[JAS9]

Dr Hadlock also talks about how a patient never had PD symptoms when relaxing at home, and they showed up when she was at work. When Dr Hadlock asked why she thought that was the case, the patient said something like: "I don't have to be punished when I'm at work." There are other examples in her books.

[Limpmaster]

I don't have a tremor. But I have noticed that at times I can be too aware of my slow motion movement and gait issues and then they get worse. It can be frustrating when the more I try to control it, the more elusive speedy, limp free movement becomes. Alternatively, when I don't think too much about it sometimes I can walk and move almost naturally. So weird!