I'm one of those people here in the states who wrote to Dr. Costantini (in 2016~2018) on behalf of several friends living with PD. I just typed up an email full of questions, sent it even though I didn't really expect to get a reply.
I was very surprised to wake up the next morning and see his reply email in my in box. I was expecting it to be one of those computer generated replies it came so quick! He was very open about what he was doing and very helpful in terms of answering questions and he even sent links to his videos and clinical reports detailing his use of thiamine in his PD patients and he encouraged me to stay in touch and let him know when my friends were ready to start his protocol if they decided to do it. He told me to let him know if I have any more questions as he would be more than happy to answer any questions, any time! I let him know that out of my friends with PD, probably only one would be able to actually go to his clinic in Italy. He answered that it was no problem at all, that he could probably work with them via email and make adjustments to their regimens if he deemed it necessary.
He told me that his studies which he sent as a link, I should print out and give to my friends to show to their doctors as they may be willing to do the treatment for my friends.
Well two of my friends tried that and their doctors would not even look at the few sheets of paper! One doctor told my friend it was BS without even opening the envelope or having a clue what the treatment was! Both friends, have different doctors but it was like they were reading from a script, because they both said almost the exact same thing. One of these friends went to another neurologist who was reportedly a well known teaching doctor and when my friend asked him to look at the papers and let him know what he thought. The doctor told him that he had no time to waste reading these papers which , again, this doctor had no idea what was on these papers.
When my friends told me what happened, I was sort of surprised , but sort of not surprised! These are doctors who are too busy running their practice to be real doctors! They had no idea what these papers said and they were all three unwilling to even give them a cursory inspection. God forbid there might be good information on those papers!
I was talking to my friend who had taken his papers to the two different doctors and I just looked at him and said, 'these are the people you are entrusting with your health and life'? He had no answer. I said your doctors are telling you that they have no time to look at something that could have a major impact on improving your symptoms and tell you it is BS without even knowing what it is. Instead they are quite happy to have you continue with meds that are doing absolutely nothing to even slow your disease progression and they already know how that scenario is going to play out for you and they just don't care! Again, my friend had nothing to say other than his doctor had talked to him like he was an idiot for even asking for the doctor to look at these papers!
I asked him, 'if we were in Italy and I wrote to this one doctor, who is also a teaching doctor, who wouldn't even look at the papers, do you think he would have even replied to my email '? My friend answered with a no. I told him, ' and this is who you want to entrust your life to'? He said, I don't feel like I have much choice!
It was a little disturbing to me to see these guys who are calling themselves doctors and all they seem to want to do is prescribe the standard meds and send their patients on their way as quickly as possible! I'm sure there are good neurologists out there, but they seem to be scarce!
I was taught growing up that doctors were to be trusted and respected because they make people well when they are sick and they are kind and compassionate. In this whole scenario, the only person who seems to fit that description of a doctor is Dr. Costantini! He was more than willing to help in anyway, he answered all of my questions and he never made me feel stupid or that I was wasting his time. Oh and he didn't send me a bill either!
To Dr. Costantini, I say thank you very much for your generosity and willingness to help patients and strangers alike and for your compassion, understanding and kindness in doing so!
Dr. Costantini is in a class by himself as far as I can see!