Just to let you all know that I have just finished building my own Led light therapy helmet as guided by Dr Catherine Hamilton from Tasmania. Cost about £30 which is a damned sight cheaper than the £1200 charged by Vielight. I'll keep you all posted on if there are any improvements to symptoms over the next couple of months. Feel free to write with any questions you may have. Best.
Red Light Therapy: Just to let you all know... - Cure Parkinson's
Red Light Therapy
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jeeves19
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Can you provide info on how to build the light therapy device or a link to the site where you got the plans? What the heck, I may as well give it a go.
I know it's been 6 years, but I'm interested in building one. Did it help? If so, in what ways? Thank you!
You'll have to post a photo!!
Thank you for sharing - I am very interested in how it goes.
Very innovative! Are you able to share the plans? This is so much cheaper than the Vielight option which I was about to buy it would be a godsend to find a cheaper option.
I found this:
goodmenproject.com/featured...
It seems that this guy built it with just regular 670nm led strips fitted inside a plastic bucket in a spiral path. At the end of the article it mentions that now he added a second strip of 810nm in between.
Another useful fact is that he uses it around 30 min daily, 15 minutes of each frequency.
I will keep looking for more details.
Regards,
Does anybody know how you post photos? To my annoyance I can't seem to be able to find out how I do this! Jennifer, just type redlightsonthebrain into Google and this will take you to Catherine Hamilton's blog where there are instructions etc. I found it helpful to engage a friend who's very practical and has an eye for things scientific. I don't think that I could have built it alone. A problem shared is a problem halved and all that!
Anyway, if somebody advises me how I'd be happy to show the 'hat' off.
I enclose a internet reference to the article that initially took my interest below:
theaustralian.com.au/life/w...
Best
I went to the Australian website you provided but it seems one has to sign up for a subscription before access to any articles. Can someone direct me to a different article on same subject, for free please?
Thanks,
Jennifer D
I don’t have any subscription. Type Max Burr Parkinsons into Google and that ought to give you some entry options via the web.
Thanks for much! And I am hoping we all get a wonderful surprise from its use.....?
Jennifer D
Worked out how to up load a pic but every time I try it keeps telling me 'Whoops there was a problem uploading this photo'. Apologies everybody.
Well here we go. I bought the Vielight. It was recommended that I use it every day for 20 mins (it then shuts off) for 6 days. Then 1 day off. Use it until there is improvement, then every second day. It is expensive, but if you buy direct from Vielight you get 80% of your money back after 6 months if you aren't happy. Here's hoping for improvement. There are quite a few videos on youtube with light therapy. I will keep you posted on any changes. It is important to keep a diary on all this. I started off my Vielight treatment when I got my meds down to 100mg/day. Next week I will be off them totally. I have some tremor in my right hand. I now have Bradykinesia in my right arm and leg. Nothing really bad, but it feels like I am moving through mud or my right side is 4 times as heavy as my left. I wish us all luck.
Interesting. I was advised by the original creator of the light hat that I made to use it twice daily for 20. Wonder which is most beneficial? Good luck as well!
Let us know how it goes.
Can you let me know how you went with the vielight pls thanks
Hi Eliza,
I am very interested in your work .
Did you find that you could do without any pills after more exposure to your Vielight ?
Looking forward to your reply with much interest .
All the best
Tim Glover
PS are you in the UK ?
Hi Mekonn. I stopped using the Vielight, it didn't help. I did get off medication, went back to my neurologist and said I wanted a little bit of something. I was put on 50mg of Madopar 3 times per day. That was 2 years ago. I have upped it to 4 times a day and supplement it with 15% Dopa Mucuna. I find exercise helps the most.
Bravo, well done that man. Now let's see improvements. 
Can you uae this if you have had Deep Brain Stimulation?
I don’t know Jeanie. Certainly the rays don’t do any harm to a ‘normal’ brain. I suggest that you ask your neuro?
When I investigate further, find information that are discourageing:
"We should note that in Parkinson's patients, although extracranially-delivered NIr may not reach the zones of pathology in the brainstem and hence, we argue, have limited neuroprotection, it may nevertheless provide some purely symptomatic effects. In Parkinson's disease, there is much abnormal activity in the cortex (Samuel et al., 1997; Sabatini et al., 2000; Haslinger et al., 2001), a structure that is within range of NIr signal when applied from an extracranial source (see above). NIr may help normalize this neural activity, leading to improvements in movement (Johnstone et al., 2014a). Here, the NIr therapy would impact on the abnormal neural circuitry that has resulted from the loss of dopaminergic cells, rather than on the diseased dopaminergic cells themselves. This form of NIr treatment would be purely symptomatic, rather than neuroprotective. We propose that such symptomatic treatment by NIr, namely clinical improvements without any underlying changes to the pathology, would be short-term; for long-lasting clinical improvements, we suggest that a reduction in the pathology through neuroprotection would be required. Hence, for neuroprotective and maximum therapeutic effects in Parkinson's disease, NIr would need to be applied via the intracranial optical fiber device (Figure (Figure33).
In summary, there are clear indications that NIr can be an effective neuroprotective treatment for both neurodegenerative diseases, although the modes of delivery would be different; while extracranial NIr therapy would suffice for Alzheimer's disease, intracranial NIr therapy would be required for Parkinson's disease (Figure (Figure33)"
I spoke to the author of this research and he points out that this was an earlier conclusion he and his colleagues made but that they have since revised following further evidence.
I'm also interested in what would be an example of an intracranial device. Is the vielight which is placed in the nose considered to be intercranial?
Yes it is and has greater access to the substantia nigra as a result. I am trying to develop this augmentation for the red lighting hat but it’s going to be a challenge !
I think this is a direct link to the instruction page onhow to maky your own:
Thanks Geeves. Very kind of you to let us know. Do you build it yourself and make sure it's safe to use as it can "zap"?
Thanks for your reply.
Hi; Just wondered - were you able to find the recommended optimum wavelength LEDs (670 nm and 810 nm) or did you have to compromise? Regards
Who I bought the first strip from is reddish but the supplier seems clueless about nm yet Catherine Hamilton assured me as long as it’s red it’s achieving something! I’ve just ordered a strip at 850 nm and again I’m assured that there’s not much diff between 810 and this. I found a supplier in China But they seem to want a semi bulk buy coming to 300 dollars. I’ve asked them if they can scale this down and I await their response
Can you please tell me the websites/suppliers who carried the 850 nm and also the 670 if you found it (website/part number)? It seems like the largest nm I can find is 628 in medium to low intensity.
I did find one vendor who ships from China, ledlightsworld, and it's $32 for a 5 m 670 nm strip and $40 for a 5 m 850 nm strip and $25 for shipping, so about $100 to get a 5 m strip of each. So that is one option. I'm curious if you found something more local and less expensive.
By the way, how many meters of the LED strip did you use on each light?
Thank you,
Pam
Hey Pam. Go for the
China supplier. I had a friend who lives in Hong Kong who did some leg work for me which was lucky. I had an email from Max Burr yesterday which was wonderful BUT he reckons most of his healing came from the 670 and seemed to negate the relevance of the 830. Good luck🙂
Thank you. About how many meters of strip did you use for your light? I'm thinking about building more than one.) And, by the way, what results have you seen so far?
Well I haven't had my world turned upside down I have to tell you! But I think that it has to be used for a while (months maybe), I'm not a bad case of PD yet (I think the worse the symptoms the more noticeable the healing?) and I suspect that my current led strip might not be 670nm. When I showed Catherine Hamilton the advert for the strip she wasn't unduly concerned and said that it's easy to get worked up about the exactitude of 670 but that 'as long as it's red' she'd use it herself with no problems. But I sometimes think that my original strip verges on 'orange' and hence the new strip that was purchased in HK which I know for sure is 670. So I'll probably pull the old one out when I get time and bung the new one in (shame cause the original had a fitted plug which made it very usable).
I think that I used the 5m in Hat 1 although there might have been a bit left over? If you're having both hats then make the other 830/850. I think 15 on each wavelength is the way to go although Max's comment that his healing happened mostly with the 670 was slightly concerning when one wonders why the 830is even bothered to be forwarded. Maybe different folks respond to different wavelengths?
I wrote to Eliza Jane yesterday to see how she's getting on with the Vielight. I'm curious cause I think the V might have more penetrative properties due to its nasal applicator. Then again Max has done very well with the bucket and has reversed several key symptoms.
Best, Jeeves
Thank you!
Keep in touch eh?
Yes, I will. I will be making a therapy help for my dad who has Parkinson's and is 88. Parkinson's runs in my dads side of the family and I'm thinking I may make one for myself for preventive use. An interesting technology I found helpful for my dad is the Earthing Technology that you can find out more about on on the website earthing.com. There is a related book you can get on Amazon and also a link to research from the website if you are interested.
Your reply made me remember something else I was going to mention: even if the remission of symptoms doesn’t take place, I hope that the therapy may be - as you said - neuro protective?
Have you been on Catherine's forum/blog? I just joined.
No Pamela. I started going thru a pet hate of mine to access it (those annoyingambiguous pictures that ask you to hit all the boxes that have a signpost in and which I invariably get wrong somehow 😕). I can tolerate one challenge but when I was then presented with a second page of nonsense I chose not to proceed. I could not bear the thought of jumping through all of these hoops every time I wanted to access the forum!
You only have to do it the first time. I think your participation would be valuable to others. Your responses were very helpful to me.
Did you happen to buy the bucket for creating your light therapy hat online? If so, could you please share. I'd like to find one with the proper dimensions without having to do a lot of cutting down the height.
Thanks!
Pam
No Pam I went to the local hardware shop 😊
Ha! I'm wondering if you would be willing to do me a favor and take a photo of what the electrical stuff outside of the hat looks like put together all the way from hat to plug in and either post here or on the red lights on the brain blog. I'm having trouble conceptualizing and to have one or more photos would really help. I'm not finding one on the blog.
Thanks.
Pam. Are you Uk or US or even Aus?
US
If in UK I would have called you up. I’m struggling to know what I can give you Pam as Catherine uploaded about 44 pictures sequentially of the hat being built. Any pictures I’d add would push this up to 47! And there are pictures of mine around the site anyway. Are you sure that you have explored all of the possible hyperlinks? Catherine has a slight tendency to embed an important link inside another that can open volumes of support and it’s easy to miss them occasionally. Double check or write to her ? If no luck message me privately with an email and I’ll take any picture you need. But trust me, it’s all on the blog ‘somewhere’.
Hi jeeves, i just saw this and would like to know how it went. I would like tobuil the bucket for my mum. Her neurologist said we are stuck with tge treatment and she is suffering. I am in the UK.
Type - all one word- redlightsonthebrain and you ought to be able to get to Catherine’s website. The plural s should be omitted if you don’t get where you want to go. Come back to me if you’re still having difficulty.
What is Catherine’s blog called and what is her surname pls? Thanks
jeeves19 Who is Max Burr?
Max is a retired Australian politician who had the idea for the bucket as a PWP. Catherine Hamilton is the retired GP who helped him create it.
Ah, thank you....I knew who Catherine Hamilton was, but not Max 😊
There are a number of articles online about Max Burr and his light therapy helmut. Google Max Burr Light Therapy. The instructions for creating your own are on the redlightsonthebrain.blog
Hi jeeves19 the idea to try red light therapy was Catherine's, and she approached Max to see if he wanted to try it. Catherine made a succession of devices for Max as she learned about the practical issues of wearing them. I helped by doing some of the electrical wiring. It was great to see Max's improvements, but not so pleasurable to see him trying to take the credit for Catherine's work.
Incidentally, Catherine was not a GP - she was a specialist occupational physician.
Thanks. Good to hear from you. I haven’t used the hat for ages though. Maybe I expected too much too soon? Do you know Chris Lacey from Tasmania? He’s about as successful a PWP that I’ve ever known and it was he that originally alerted me to the red light therapy.
Yes, I met Chris a while ago. He is an amazing person, and does a lot to help people with PD and other neurological conditions. Catherine's experience is that the light device needs to be used consistently, every day, and it may be some time before improvements are noticed. It is quite common for partners to notice improvements that the people with PD do not notice. I believe she discusses this in her blog.
What's the name of the supplier in China please PamelaLynn
For some reason, I'm not able to post this information here as I get a message the content is inappropriate. Maybe it doesn't allow the posting of vendor websites? I do have the information on the the redlightsonthebrain.blog forum, which is easy to join, so please go there for the information.
Is it simarley to this ?? (unfortunately no shipping to Europe...) do you have an address in Europe ??
youtube.com/watch?v=b1tK4oe...
Thanks for your answer !!
Jan
To those following this post I’m happy to now report an improvement in symptoms and levels of energy😊. Only trouble is that I started Mannitol at roughly the same time as building the hat and so it’s hard to discern which is contributing most to this improvement but there’s definitely been a shift for the better. I’m naturally very pleased but will continue to monitor progress given that it could be a fluke or some positive yet temporary phase.
Thanks a lot for the feedback. For how long have you been taking mannitol? What other suppluments and prescription medications you use? What type of exercise you do? As most of the PWP mention that PD has to be tackled with multi pronged strategy. Would appreciate if you can upload the video of making the red light hat to YouTube and share it with us.
All of the information you need to make the hat is provided by Catherine Hamilton on redlightsonthebrain blog. I do the usual exercise (fast walking, high cadence cycling) and the supplements are similarly nothing out of the ordinary (NAC, Fish Oil, CoQ10,D3). On thing that I think has made a difference is a soluble magnesium drink that has calmed me somewhat. I have been taking Mannitol for about 3 months now and the RED lights for about 2 months?
Have you tried Methylene Blue? It's supposed to be powerful when combined with red light therapy.
I am Parkinson patient from Taiwan.6 year,my husband construction one.use double stripe
660n and 950n,use one month improve a lot.also is simple and cheap.
how to upload pdf data more people can share.its easy cheap construction.
Email it to me and I will upload it to some file sharing website and share the link with everyone on the forum. I have sent you my email address via message
Here is the download link
180110 XinJiang Cap LLLT
concept.pdf
Not convinced to want to try again; As my previous sessions with a traditional infra-red (physiotherapist) lamp I tried way back gave no improvement what so ever. However, I will be very interested if this method does provide a real measurable benefit.
While infra red is used to assist internal soft tissue ailments, my thoughts are immediately asking whether infra red light actually 'physically penetrates through the skull bone tissue' that effectively protects the brain? It may just bounce back off bone to warm tissue in between source and reflector.
You are right. There is an intra nasal gadget available in the market which they claim is more effective in reaching brain
But where can you get those from as single units? I see you didn’t have any success with vielight. Are you going to make a hat??
Got this for you from one of the scientists who pioneered this process. Lap it up:
The light does go through the skull and access brain, perhaps not as deep as the midbrain, but it does access superficial layers of cortex. So it may act through there. However, me thinks it can be neuroprotective and hence beneficial by activating something in the vascular system or, even more likely, the resident immune system (eg microglial cells). These cells could be activated with the brain itself (eg cortex) and then access them midbrain, or there could be a molecule activated within the vasculature small enough to cross BBB and access the distressed cells in the midbrain. We do not know as yet.
Hi Jeeves19
'Lap it up'; do I detect a note of arrogance filtering through? In my questioning doubts I had no intention to offend and I humbly apologise for the initiation of such in response.
I have searched and read about some Photobiomodulation, Have there been any Clinical trials or Animal Research programs & tests done that identify "exactly" what happens to the various types of cells within the brain reacting in response to the Infra Red treatment? If so please kindly forward a link to Published papers etc., so I may learn more.
For what it is worth; When my Physiotherapist used a IR lamp on my spine neck and head during treatment I most certainly felt nauseous, & worse still I found it counterproductive to muscle tone later on in the day.
I will do some more research
Kind regards
Andy
Isn't it an answer to your question? :
ncbi.nlm.nih.gov/pmc/articl...
Many thanks for sharing that link iqbaliiqbal, an interesting read and lots to learn as I look at things in greater detail.
Regards
Andy
No intention of arrogance Andy. It’s how I speak. Informal rather than formal but I can see how this might come across as flippant. Have a nice day😊
I am sincerely interested to hear how & if things progress with your setup Jeeves. Are you conducting / sharing any trials with PD patients in your area?
While I am looking into the LED aspect in more depth to try and evaluate any relevant possibilities as I do not fancy the idea of an implant.
Regards
Andy
I am still trying to get my head around possible potential of Infrared therapy, and one aspect keeps springing to mind; Natural sunlight obviously provides Infrared in good measure yet beyond the initial gladness Spring brings (which I have always put down to being a lift from increased vitamin D levels) that boost seemingly wears off as Summer comes along.
Is the progression of PD attuned to seasonal ebbs?
And if so, does one need to regulate levels of Infrared therapy to take into account the seasonal variables provided by Full Sunshine & Overcast Cloud?
Are there less cases of PD in the more sunny regions around the world? Or evidence to show that PD develops at a slower pace in warmer sunny climates?
Above is a Youtube clip which I think discusses these aspects that you are interested in. I don’t think led provides a complete solution at all btw. I think it’s one worthy tool amongst a range of others such as diet, fasting and exercise.
how are things now Jeeves, hope there's been more improvement, any
news on the intercranial device, i'm in UK, Have you had contact with
Eliza Jane? What about your sleep.
samwebster
Sorry Sam, I stopped using it after 3 months due to dubious levels of improvement😕. Dunno what to say really and Eliza Jane is selling hers when we last spoke . Sleep is shite unless I take a sleeping pill which I do often. They’re disapproved by many but WTF we have PD which calls for rather desperate measures eh?!
I too discontinued it after 2 months. I was getting worse. My Vielight is in the locker now
Ouch Iqbal. Expensive mistake eh ? Wonder why Max Burr did so well with his own home made contraption?!
I am ready to place order to Max Burr this time if that works! PD is such a horrible disease that one is ready to spend whole life savings to get rid of it
Hi Iqbal ! Thank you for the info..........what about this......
parkinsonsnewstoday.com/201...
But on the "light-front" it has become quiet.....?....
Did you try max burrs hat ?
I agree but I think the trouble for many of us is that we expect a reasonably timed cure and I suspect any changes could take years by which time most think that whatever protocol they embarked on didn’t work. I’m as bad as anybody and am pathetic in self application over an extended period.
With many of the experimental formats and even Supplements a slight improvement however momentary can lead to 'Placebo type effect' and only Time will tell, for each individual, differing case.
Unlike a headache or tooth ache, Parkinson's creeps in after a whole lot of damage has occurred over a few years, so I expect any Natural or application based remedy will take a few months to really kick in, after any initial feel good period.
And as the human body is usually quite good at healing itself, I well imagine only the reversal of the disease would subsequently follow, if that treatment is actually having a real effect upon PD
Hello,
I am new to this group. I am in the process of building one of the ' LED therapy hat '. Can anyone who has built this , please advice ...
- what has been the outcome on your PD - i.e. full or some or no effects ?
- how long do you have to use it to gain the effects ?
- which wavelength seems to be more effective ?
- any side effects ?
- how have you 'measured/ascertained' the effectiveness of it ?
- Anyone who has used the Vielight device ( and headset ) and found it to be effective ?
Thanks.
Did you find the hat improved yet symptoms?
I am looking at ET and PD tremors and would like some input please.
- Where do you have tremors ? - e.g. hand(s), leg(s), head, chest, neck
- or a combination and Left (hand or Leg ) or Right (hand or Leg ) ?
- Is the severity affected by weather/time e.g. morning/night, winter/summer ?
One gent I know has ET on his left hand ( action ) and PD on the right leg ( rest ) and severe head tremors - neuro said it was very rare case.
Thanks.
Soonlye. I built my own and used it for about 2/3 months twice a day for 20 mins. No appreciable difference in motor symptoms. But I’m getting the sense that it’s use is really more so for dementia (read posts above ). I know somebody personally who reversed their dementia via red lightly therapy but few PWP seem to have gained the relief they’d hoped for. Sorry😕
Hi Jeeves , I guess it is like any medicine/treatment .. it works on some people and not for others. But interesting that it worked in other aspects for Max and the lady in Taiwan. However, if you don't try you won't know...and one has nothing to loose, except time and $100 - small change, if there is some effect.
When you say your friend with 'dementia ' did you mean specifically Alzheimer's ?
Thanks.
I’m interested how it helps dementia as my husband has Parkinson’s and Lewy bodies dementia. Can you pls tell me about yr friend and how it helped dementia?
Memory returned. She used a Vielight
I didn't want to write since I saw you stopped after your 3 month mark of using red light therapy but decided to. I researched the therapy for a friend and also came across Max Burr's article. I have been using a red light belt that uses 850nm wavelength on him for one month. I have been using it across his head on top from ear to ear for 40 minutes a day done before bedtime and his night time REM behavior just about stopped, esp. his arm slinging. I had to return the belt since the timer was faulty and in the one week that I've been waiting for the replacement, I have noticed only a slight return of REM behavior, such as laughing and talking in his sleep, and arm slinging only once. I will mark the calendar and start tonight to see how he progresses in 3 months. I'm also hoping to get with his doctor and discuss Opicapone in place of Entacapone. As of now, I don't think Opicapone is available in the USA.
Any updates?
Do remember where you got the 850nm strip?
We used the belt every night for months, then just tapered off to not using it at all since I let my mom use the belt for her knee pain a year ago. He at that time had completely stopped having nighttime tremors, talking, etc. He sporadically has some night activity now but not anywhere near the level he had 2 years ago and not so bad that I need to get the belt back from my mom for him to use again. We are very pleased with his results.
Here's where I purchased the belt:
Hi tsherm, any updates please? Thanks.
We used the belt every night for months, then just tapered off to not using it at all since I let my mom use the belt for her knee pain a year ago. He at that time had completely stopped having nighttime tremors, talking, etc. He sporadically has some night activity now but not anywhere near the level he had 2 years ago and not so bad that I need to get the belt back from my mom for him to use again. We are very pleased with his results.
Here's where I purchased the belt:
Any update now pls Jeeves. Is it worth the effort??
Munchy. I started it because a friend of mine had very good results with his wife who was in the early stages of dementia, now recovered. I thought ‘why not Parkinsons ?’ But I had little relief and I’m beginning to think that whereas dementia affects much of the brain (but PD mostly a small section buried deep in the organ). It’s for THIS aspect that red light therapy may work. So motor stuff, not really but cognition, memoryetc probably. Hope this helps.😊
Hi Jeeves I was wondering how you got on with red light therapy ... Anny noticeable changes ? Regards Colin
I know you wrote to Jeeves but we had great results using red light therapy.
Here's my reply to a couple of posts.
We used the belt every night for months, then just tapered off to not using it at all since I let my mom use the belt for her knee pain a year ago. He at that time had completely stopped having nighttime tremors, talking, etc. He sporadically has some night activity now but not anywhere near the level he had 2 years ago and not so bad that I need to get the belt back from my mom for him to use again. We are very pleased with his results.
Here's where I purchased the belt:
See response directly above your own Coling.😊
I’ve been using the Vielight gamma for about 9 months now. I’ve been able to reduce my amino acid dosages twice but not sure if it’s the Vielight working or my adding B1 to my-regimen or whatever ? I guess I added mannitol also but that was just lately. Or maybe I’m just getting more accepting of my altered state? I’ve never experienced any shakes other than a foot that’s occasionally trembles but poses no problems. That’s better since getting on the amino acids but hasn’t totally resolved. Wish I had a control twin to see what has helped and hasn’t, but then I wouldn’t wish this on anybody. I kept my light as I didn’t want to argue w success whether it was warranted or not. Best wishes.
I am interested in building one for my wife. Where can I get information? Estia
Type redlightonthebrain into Google. Might be redlight or might be redlights (plural).
Any update on how you re going pls? Is it worth using these led lights?
My husband has been using Vielight gamma for 5 months. These are the improvements:-
- he wakes up 2-3 a night to pee as opposed to 6-8 times so gets better sleep
-he is in a better mood and calmer, less irritable
-his sense of smell is better though he cannot identify the smell
We used the belt every night for months, then just tapered off to not using it at all since I let my mom use the belt for her knee pain a year ago. He at that time had completely stopped having nighttime tremors, talking, etc. He sporadically has some night activity now but not anywhere near the level he had 2 years ago and not so bad that I need to get the belt back from my mom for him to use again. We are very pleased with his results.
Here's where I purchased the belt:
Do u think u could use this for knee arthritis ?
Yes if you get no relief from anything else! I’m doing well on the B1 and keep forgetting to use the hat sadly. I did it for about 3 months daily and didn’t notice much difference😕. I believe those that see big difference are those with cognitive and dementia ? But you have to try for yourself and see. I’m an impatient sort of person and tend to want quick results.
Hi jeeves ! How are you doing ?
How it goes with the helmet, I've just red again the article of ABC Australia....
They have now started a trial.
Do you know something about new developements ??
Please would you pass on that information? I live in the USA, I have contacted the Dorset Men's shed to try and buy a parts list/ kit, as shipping for the bucket will be stupidly high. Do you have a parts list you would share with me? I do not know if i can handle this any longer - I speak of watching my husband curl up around the edges. I have to do something. I have the red leds but am having a devil of a time sourcing nir infrared 810nm lights. Any help would be so gratefully received
RegardsAAG
Go to website redlightsontgebrain.com they explain how to build, what you need etc. But get a practical person to help. Don’t go alone if you’re not that way inclined!
one of the forum members had shared following handwritten procedure with me
filebin.net/xnjjlrb4av1rt36...
Thanks for sharing
here is a more simplified DIY guide
We used the belt every night for months, then just tapered off to not using it at all since I let my mom use the belt for her knee pain a year ago. He at that time had completely stopped having nighttime tremors, talking, etc. He sporadically has some night activity now but not anywhere near the level he had 2 years ago and not so bad that I need to get the belt back from my mom for him to use again. We are very pleased with his results.
Here's where I purchased the belt:
I have looked at redlight on the brain and cannot seem to access the important bits. I will keep trying. Thank you for reaching out.
Helped if i typed all the letters. I have the plan now to make the bucket...
Sorry that it is me again. My husband has a very expensive vielight (nose clip) which is 810nm. Do you know if there is any difference in efficacy between 810nm/850nm/910nm? It is all in the same spectrum. Also he has a lllt laser which is at 810nm. Is that the magic number? Some kind person on this forum sent a hand written schematic that uses 940nm nir infrared lights. Do you know or know anyone that can explain the difference? Can i use 850nm that are more readily available than 810nm? You can tell me to go away, as I am trying to not be annoying, I just do not have a great starting place, and it looks like you are it :0)
I have sent you the email address of the lady who had developed the procedure (hand written ) . May be she can explain why she has chosen this wavelength. Check you PM
Thank you so much!
From what I remember, Max Burr had most of his relief from the 850. He then tried either moving up or down and had two strips of different emission in the hat but in retrospect, he didn’t really think that the later addition added too much to the overall result. don’t abandon redlightsonthebrain. Just keep trying to explore the site and you’ll find what you want eventually. It has pictures to support your efforts. Catherine Hamilton will answer any of your questions if you email her. She’s very helpful.
Thank you
redlightsonthebrain@gmail.com
HI my friend has been diagnosed with mild symptoms ....
He is on a tight budget, how did u manage to make it for that price are u able to link where u got the correct led lights ??
This lot will sell you 670nm. They pretend that they’re American but they’ based in China.😆
All you need is a bucket and some cutting tools. Go to redlightsonthebrain.com for support and construction stages.
haha ok, well thanks - thats good to know where to get the 670nm's...
but what about purchasing the 810nm's/ 850nm's? please??
(or u mentioned earlier above elsewhere Burr found 850 better !??- which r we best to go for ?)
The 670 from China might cost a decent bit of dosh to be fair but a standard red strip shouldn’t be more than 12? On Amazon and a bucket £10 ish? Certainly possible for under £50 I’d say at the most. Failing that you can buy the Vielight at £3000!
Hi I have made a red hat , but I think that I used the wrong LEDS ,because there was more heat from the back of the LEDS than the front! Could you please send me the actual address and the spec of the ones you used and the total number.. then we can compere the results with each other .All the best
Tim Glover ASIS,FRPS.
Hi Jeeves I want to make a burr red hat .can you please tell me where to get the correct 810nm LEDs from .and it seems that the latest hats have al foil in side the bucket as well . Is this correct ?
Looking forward to your reply with much interest .
All the best
Tim Glover
Tim. I bought my lights from China but can’t remember where exactly. You’ve just got to do Google to death and you get there. They have Western names and try to make out they’re in the US but they’re in China. I covered the interior with one of those so silver covers you get for car windscreens in the winter. Got it from Homebase.
Any more information on this? I am sooo interested!
Well sorry to burst the bubble but I’ve stopped using it. It appears to be able to address non motor symptoms primarily and these have never really bothered me as much as the motor stuff. I think it’s problem is that red lights do good things but the substania nigra is buried deep inside the brain so it’s actually quite difficult to reach it?
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