Sinemet shortage: I recently went to the... - Cure Parkinson's

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Sinemet shortage

jt12 profile image
jt12
28 Replies

I recently went to the pharmacy to pick up my medication, in which I usually get a 90 days supply, but the pharmacist told me that I can only have a 30 day supply because of the extreme shortage of Sinemet. Has anyone else experienced this, and is it possibly because there are more people being diagnosed with PD, which I hope not, or are they really low on the dopamine that goes into the pills?

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28 Replies
MBAnderson profile image
MBAnderson

that's hard to believe. There are several hundred thousand people if not millions taking sentiment. I wonder if it's just your pharmacy is run short and is trying to spread out their supply. Where do you live?

(I use voice recognition software. Sometimes it's not too smart.)

jt12 profile image
jt12 in reply to MBAnderson

Sumner,WA

It must just be our pharmacy,because that would be very unfortunate for so many people, and it's probably the #1 drug used for PD, right?

MBAnderson profile image
MBAnderson in reply to jt12

they manufacture the dopamine, that is, they don't have to go out and find it somewhere. I get mine from the VA so I'm probably in the clear but still find it hard to believe. Maybe try calling a pharmacy and some other city see if they say the same thing.

Lindylanka profile image
Lindylanka in reply to jt12

There have been sinemet shortages in the past, some of them affected a number of countries globally. In my experience this has not meant no levodopa at all but maybe a different form, a generic or somesuch. I am concerned that a pharmacist is saying this though, so it is something to watch.

Which country are you in?

jt12 profile image
jt12 in reply to Lindylanka

US

Caroleeney profile image
Caroleeney in reply to MBAnderson

The hurricaine in Puerto Rico has destroyed a lot of pharmaceutical manufacturing facilities there. I don't know about Sinemet specifically, but shortages of a lot of drugs are expected for some time.

MBAnderson profile image
MBAnderson

these big pharmaceutical companies are smart enough to know the rate at which the drug is being prescribed and stay ahead of the demand.

Popeye529 profile image
Popeye529 in reply to MBAnderson

What does it cost for 90 days?? What does it cost for 30 days?? Which one the 30 or the 90 days makes the pharmaceutical company the most$$? Anyone watch 60 Minutes, on CBS 10/15? if you didn't,, you should have. I am in the U.S

Prayingforacure profile image
Prayingforacure

Years ago we was told this and then they changed the brand name. My husband did not do well on the generic brand.

lempa_nik profile image
lempa_nik

According to the FDA, there is currently a shortage of the extended release C/L tablets, which probably just applies in the USA. This is real.

accessdata.fda.gov/scripts/...

ij0511 profile image
ij0511

My pharmacy told me last month ( I am fortunate that my Gp agrees to 2 monthly repeats) that it was discontinued and was replaced by Eldepryl a more expensive alternative. I call my hospital nurse practitioner who said I should not notice any difference. 2 weeks on and I am fine ( fingers crossed)

Hikoi profile image
Hikoi in reply to ij0511

This is very strange. Elderpryl is not sinimet it is generic selegiline.

ij0511 profile image
ij0511 in reply to Hikoi

Thanks. Confusion reins supreme. Sorry my fault. I do take sinemet and. Selegeline. New drug is the selegeline alternative. Dohhhhhh 😰😨

uvmmom05 profile image
uvmmom05

I have found very often that teh pharmacy runs low and they have to give me some to get by and then fille the rest in a couple days.

laglag profile image
laglag

I take C/L ODT which is an Oral Dissolving Tablet and I had trouble getting it the last 2 months but could never find out why. It's made by Mylan.

GymBag profile image
GymBag

Probably a real shortage depending where you are. India is quickly changing to western medicine and more cases of PD being diagnosed there and as with any shortage ,hording may be a factor. Manufacture and supply of medications including over the counter are a balancing act in a world wide distribution using the same factories . Never wait until the last minute to refill your prescription and keep an emergency supply stashed away. It may take several months to build it up and you need to rotate it to keep it fresh. A world wide supply/ distribution problem may be just one flue epidemic away, for example , Amantadine is no longer available any where in any solid pill form, only in liquid and that is becoming low standing supply. Other meds are now being made in that factory and it is not going to change back.

Tamarisk profile image
Tamarisk in reply to GymBag

We still get it in a green and white capsule here in Spain

Babowen898 profile image
Babowen898

We were unable to get the 25/100 mg extended release sinemet. We tried everything, and finally the dr changed my husband to the 50/200 extended release and halved the number of tablets.

swva profile image
swva

I couldn't get Sinemet ER from Express Scripts a few months ago but my local pharmacy was able to supply a 30 day supply. Express Scripts was able to fill a 90 day supply last month.

I have not noticed any shortage of Amantadine. My wife has been taking it for years and she is still able to get the same pills she has always taken.

Ace1 profile image
Ace1

My Pharmacy (Walgreens) never has Azilect or its generic on hand when I go to refill it. But often times other stores do. It's either store mis-management or some corporate policy driving all this to keep costs down profit's up. My insurance allows refills 5 day in advance, so that's when I do it every month. So like someone else said, I build up my home supply just I case I can't get a refill on time.

vincea profile image
vincea

I also get my C/L from Express Scripts, and have always received the 90-day refill on time - every month - since I was diagnosed three-and-a-half years ago. But something is happening with the delivery of C/L, as I received a letter from ES stating "we can no longer supply C/L automatically every 90 days unless with they are supplied with an updated prescription request submitted to them prior to every 90 days."

Woolysock profile image
Woolysock

I'm in Vancouver BC Canada. My pharmacy no longer has my usual sinemet and has replaced it with a generic alternative. Seems to be working...

RS313 profile image
RS313

i WOULD CHECK WITH OTHER PHARMACIES TO MAKE SURE THIS ISNT FALSE!

I HAVE HEARD THAT THE ES SINEMET HAS HAD THIS HAPPEN IN THE PAST

arwenmark profile image
arwenmark

Has anyone heard of shortages of Stalevo which is what my husband takes?

Astra7 profile image
Astra7

I have an unopened bottle of sinemet 100/25 (100 tablets) as when I changed neuro he moved me to madapor.

I'm happy to mail for free to someone if they'd like. It didn't cost me much thanks to the Aussie government and I'd hate to see it go to waste.

Just message me.

izzee profile image
izzee

I have been taking sinemet for restless legs it works great for me. The generic does not do so well for me. I went to get my refill and was told it was back ordered it would be in the middle of Oct. (that would make it two weeks) it is now Nov. and was told it maybe Dec. I have read all the replies but that was a year ago this is 2018 What can I do?

Juliegrace profile image
Juliegrace in reply to izzee

Are you in the US? Try another pharmacy or ask for a generic from a different manufacturer than the one you feel was not effective.

Jumex2017 profile image
Jumex2017

I was told that they are not manufacturing and supplying privately anymore but in hospitals they will continue. This is in Hong Kong.

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