Weak legs

[guy1947]

I was diagnosed with Pd without tremor in October 2016, even though I believe I've had the disease much longer.My biggest problem is very weak legs from the knees to my feet,and the burning is all most unbearable.I try to walk as much as I can using my walker,but when my legs give out so does my lower back. This is my first time on here and would like to hear from others with same or similar problems.

[Joynb]

Sifrol (pamiprexole) can be very helpful with weird sensations in the legs. Talk to your neurologist about this.

[QNTT]

Burning feet ? Is it Peripheral neuropathy ? For that a B1 vitamin derivative called Benfotiamine helps a lot. Some people use it here for PD. I just got a bottle from Life Extension 100mg/cap.

Not sure how much you can step the dose up, but its vitamin B1, not much risk.

[Gitmo1995 in reply to QNTT]

I am about ready to give up. I can't smell, I can't taste, I have a problem swallowing, I have blurred vision, pain in my feet and hands, can't control my bladder, I fall down or close to it, gential burning /itching, scalp/dandruff, depression, what a way to lead the way to the end of life.

[ddmagee1 in reply to Gitmo1995]

Gitmo 1995 Hang in there!!! I have most of the same problems. Peripheral Neuropathy in my hands and feet keep me awake at times. I have somewhat blurred vision, that glasses can't correct. I, too, have swallowing difficulties, and have to be very careful, especially with bread products, meats etc. I cut everything up in small pieces and it takes twice as long to eat as it used to. I've fallen so many times, can't remember how many. I've ended up with black eyes, concussions, hematomas, blunt force trauma, etc. Now, I use a cane and, sometimes, a walker. My taste and smell are inconsistent and unreliable. I have constipation and occasional bladder problems. Depression and anxiety creep up on me sometimes. I can really relate to how you feel! The best way for me to handle this and, perhaps, it can help you, is that I take one day at a time. Also, it is very important to have a support group that really understands, like this one. Having a supportive family and friends is most beneficial, too. Importantly, having care and support from people in the medical and care giving community makes life a little easier to deal with. Best to you and please, never, never give up!! Think of what you still can do, not what you can't do as well as you used to, or what you have lost!! Take care and know that we are here for you Gitmo 1995.

[Gitmo1995 in reply to ddmagee1]

Tomorrow a struggle, try to get some sleep

[JohnPepper]

What you don't use, you lose! That's one of the laws of nature. As hard as it may seem to you, using your legs is the only way out of that situation. Start very slowly, even for only five minutes, once a day. Then build up by a few more minutes every week until you are doing half an hour. Then start to walk without your walker, concentrating on your actual leg movement sinstead of just willing your legs to walk.

Look at my profile and see what I dd to overcome my Pd.