At few times a day I feel perfect. I know it is the meds but damn it feels good. I have never been high on drugs or drunk in my life but there is no way i could feel any better. I am clear minded. It can last a hour at a time. Matter of fact i feel that way right now.
Hard to explain. I feel no pain in fact i feel nothing, i am totally unaware of my body. I feel like i could do anything.
hope it don't get around and people start using parky meds to get high.
I have heard that some people use agonist to enhance their sex life. It is sold on the street. I know it they do because they did it to me.
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Bailey_Texas
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Interesting. Enhancing sex and other pleasures would help to explain why people on dopamine agonists ("DAs") are prone to impulse control disorders. Feels so good just can't get enough. I'm not sure how much to attribute to the PD, meds other than DAs like C/L, or unrelated factors, but I have been doing quite well in the erotic pleasure department myself.
Regarding other pleasures - I am a securities trader and the quick hit of bucks on a well executed trade is another seductive pleasure. So I can also get why people fall prey to compulsive gambling. In my business the only way for those bucks to happen is by *maintaining discipline*, so I know I had better stay away from DAs.
I switched to selegilene from azilect thinking it might help with the fatigue. My fatigue has been better, so maybe it is helping. I'll watch out for that fetishism stuff
Bring it on!! .......If you can party with a 16 stone lump of blubber which is what Ropinirole turned me into through binge eating. The good news is that it can be stopped & the effects reversed. Thanks to hypnotherapy (which includes more therapy than hypno) I have lost the weight I put on over 3 years & now I am still slowly losing weight. My PD nurse reckons this is a first in over 20 years experience.
I missed out on the sex though - it sounds much more interesting.
I think you take ropinirole Bailey; so do I. It does not, however, have that affect on me! After all I'd heard about agonists, when I was prescribed it, I was very wary. However, I have not found myself importuning strangers in the supermarket and my husband, who had lived in hope of the potential side effects bennefiting him, was sadly disappointed, I would just say, however, that despite my fears, ropinirole has worked well for me.
I had problems when i took only Requip. My wife just would just handle my pills and it increased her sex drive. It also changed her anatomy. It lasted for about a year. I was 59 and she was 58. We went from 2 or 3 times a week to 2 or 3 times a day every day for that year. Sometimes all night. It stopped when i stopped taking the Requip. I am expecting all the comments that will follow this post so have fun. But this is true.
It was me! It's going great. I really value it. It's not a substitute for other exercises because it's not intense, it's more about neuro plasticity, but I think it helps. Two things: I saw my neuro last week and was very positive about my progress, or lack thereof in the case of parkinsons I guess, and in January, which will be after I've completed the 'ten week challenge' with PD warrior, I will see the physio again. She took some baseline measurements and will rerun those, so there will be some evidence as to whether there's been an improvement.
The one thing I wish is that there was a group near me doing the exercises. It's a bit lonely doing them alone, sometimes.
It's an exercise programme. It originated in Australia but there are a small number of physios n the uk trained to show you the programme. Google PD warrior and the webpage will come up.
That is not fair. I take requip and my wife takes a small dose for restless legs. It does not have that effect. At first I thought Stevie was replying to your reply instead of Astra HAHAHAHAHA. Ow that hurts
Paranoia, marriage problems, hallucinations, etc before I was taken off by family members to help get me off of mirapex. Watch out for these issues too.
To all you party animals out there, here is the National Parkinson Foundation Toolkit about Impulse Control Disorders and their is a (downloadable) PDF questionnaire:
My husband (diagnosed 9 years ago - stage 2 right now - generally doing well) sometimes dreams vividly that he is flying through the air - he's high above everyone looking down and able to fluidly move his body, soaring over everyone else. My take is that it's the opposite of an anxiety dream - His meds are working so well that he has the feeling he can do anything (physically)!
That is great. I am in my 11th year and am 62 and doing great. What age is your husband and how is he doing. Does he exercise. I like to hear how some one at about the same amount of years is getting along.
He is 57 - he exercises like a madman, at least 1.5 hours a day. Although much of it simply hiking with our dog. He has completed the BIG program and the LOUD program. His neuro is Dr. Pagan at Georgetown - which is one of the advantages we have of living in Washington DC. He also has started recently doing stretches, push ups, lunges, and other big movement exercises in the morning before work. He started on Rytary in late summer for slow/more even release and it seems to be working well. Still some off periods of course. Some seem to be the result of too much, rather then too little meds in his system.
Hi Bailey I know just how you feel it's called normal that's how we used to feel all the time b4 dx but now it's even better those hours are precious use them to do something for you just YOU don't waste them on chores
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How do you deal with not letting the disease define you?
DBS lead placement options.
Interview of Daphne Bryan following the publication of her book: “Parkinson’s and the B1 therapy”.
