Rallying to the Challenge 2016: Survey Up... - Cure Parkinson's

Cure Parkinson's

26,300 members27,658 posts

Rallying to the Challenge 2016: Survey Update

CPT_Helen profile image
CPT_HelenPartner
0 Replies

Thank you to those of you who have already completed our Rallying to the Challenge 2016 survey.

So far there have been 86 responses and we need your help to make our findings more robust.

In one key question, we have asked what might be the most useful information for people with Parkinson’s to share for research purposes. To date ¾ of responders have highlighted that information about non-movement related symptoms (e.g. sleep patterns, pain, fatigue) would provide the most useful data.

Currently the top 3 things that would motivate respondents to share their data are:

1.Gaining personal insights from the data

2.Understanding exactly how the data will be used

3.Assured anonymity of the data shared

We would love to get the views of as many people with Parkinson's as possible so if you have not taken part in the survey but would like to do so, please click the link below.

surveymonkey.co.uk/r/2016Ra...

Written by
CPT_Helen profile image
CPT_Helen
Partner
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Rallying to the Challenge 2016, Grand Rapids, Michigan

It would be wonderful to see Parkinson's advocates in the Michigan area at Parkinson's Movement's...

Survey to understand which Parkinson's symptoms impact your quality of life

We would be so grateful if you and your spouse/partner/family members could spare 20 minutes to...

Update on the new HealthUnlocked

Hi Everyone, I thought I would write a post to clarify a few issues that are being brought up with...

URGENT - 100 PEOPLE NEEDED NO TO COMPLETE A SURVEY.....

PARKINSON'S MOVEMENT needs 100 people to complete a survey. As part of its commitment to...

S H O U T O U T L O U D !

As you know, we frequently run polls on this website, on all aspects of patient experience. That's...