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I have had Parkinson's with what seems in the middle 90s but diagnosed in 2007. Balance and slow to retrive words or just remembering are what are the most anoying now.

Often I want to sleep the day away or keep the TV on.

I can drive or join groups but don't.

I could eat healthy or exercise but don't.

I have a feeling those things are some of the defination of parkinson's.

I see this is a nice group. Hope I can figure out how to get back on to the site.

13 Replies

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  • Hi Viperwizzard,

    I am delighted to hear that you have found our forum. Welcome aboard! There are members here who have been dx'd with PD much longer than my paltry 2 years and who have a greater wealth of experience. The symptoms you mention--anhedonia (lack of pleasure)/apathy, poor balance, decreased word recall--are standard features of PD. For years , even long before diagnosis with PD, I have shared with you the tendency to sleep too much--my wife jokes about this! But it seems that insomnia is the dominant trend among PwPs, including those on this site.

    If you are curious, there is a concise, comprehensive list of PD symptoms provided by "Charsie," one of our members. He will email this spreadsheet to you if you write to him at David MacBunch <macbunch@hotmail.com> and put "PD symptoms list" in the subject line. It can also be useful for recording your condition for the sake of sharing with your doctor.

    Happy new year!

  • Hi Viperwizard. It sounds like you are already defeated! That is not the way to deal with Pd.

    Think very carefully about how you deal with Pd. You can sit back and let it all happen, take the medication your doctor has prescribed and become totally immobile.

    On the other hand you can start doing serious exercise, in the form of regular fast walking and see your condition improve, as it had with me 23 years ago. I will not even start to tell you my story in this limited space, but you can read all about it on my website - reverseparkinsons.net

    I have not needed to take any Pd medication since 2003 and at the age of 81 I live a 'normal' life and am able to walk 7 kilometres in less than 1 hour.

    Good luck

    John

  • I tend to agree with you on the walking although I'm not sure how many can actually reach the distance and speed necessary. I will say that a lot of the PD members are determined enough to do it.

  • Hi Coblrman. The good news is that even if you only do 10 minutes of fast walking it has a positive affect on the damaged part of your brain. It takes 5 or 6 months to build up to 1 hour of fast walking, but in all that time you are doing your whole body and brain a lot of good.

    The walking has such an affect on so many health problems that we can hardly resist the temptation to get on and start walking as fast as we can to a better and brighter future.

    John

  • Good morning viperwizzard

    John is correct you need to start a exercise program. This will give you some thing to look forward to and when you exercise you will find you don't think about your PD.

    I took your way for 9 years and wasted them all. For a year now i have been doing crossfit (google it) Don't worry about what you find about crossfit it is always adjusted to your fitness level. It is done in a group format.

    Only you can get up and get started.

    JUST DO IT.

    You will not regret it.

    I am now better than 10 years ago

    I also take RX meds my Dr. RX. for me it takes both to get though the day.

    Any exercise is good for you.

  • Apathy of the "sometimes oi sits and thinks and sometimes oi just sits" variety is part of Parkinsons and should improvem once on medication

  • :-)

  • How do you sleep at night?

  • welcome new viper wizard. good to have you along for the ride. i love your honesty. most refreshing! looks like you are back on this site. and you just did join a group.

    yes your right, that is some of the definitions of Parkinson's . but you already know all this. and it's easy to sleep with the TV on. that would put anyone to sleep. for the most part.

    anyhow hope this year will be great for you, and may you learn a lot more about Parkinson's from this site. nice people.

  • Dear Vipe, whereabouts do you live? Some institutions/organizations do a better job of outreach than others. All you need to do is make an initial contact with a group and you'll be hooked. I say this because you obviously have the desire to overcome isolation, which is a velvet ball and chain!

    This group is a wonderful place to start. Once you post, responses should show up in your email inbox, and voila -- those should take you right back to the site.

    I fight a never-ending battle to give up, stay home and isolate. So often the encouraging words of others in this group have provided me with the fuel to get rolling, whether it's getting outside the house or putting in 15 minutes on the yoga mat.

    Hang in there.

  • Welcome Viperwizzard.

    Hope you find this site as helpful as i have. I dont feel alone being in this online forum. We are all in this together!!!

    I was dx 7 mths ago. I determined to have:

    A positive attitude

    A nutritious diet

    An exercise routine

    All the best as you find a plan that works for you.

  • Viperwizzard, if I didn't exercise, get out in the sun light, eat healthily, and turn off the TV every day, I'd be sunk. I can also add to that list praying, meditating, reading the Bible, and talking (positively) with friends. Life is still so worth living, it's just more challenging with PD. If at first you don't have the enthusiasm to do something, try imagining yourself doing it and enjoying it (as long as it is a safe activity). That may be enough to get the juices flowing.

  • Vipperwizzard, Lets talk. I believe I can help. Please check out my website parkinsons.me and social media under the same name at Twitter, Facebook and Instagram. Also email at ewan@parkinsons.me. Take care, Ewan

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