I developed rapid eye movement sleep beha... - Cure Parkinson's

Cure Parkinson's

26,302 members27,662 posts

I developed rapid eye movement sleep behaviour disorder 5 years ago as the first stage of PD. Has anyone reversed this condition?

Bitsy profile image
5 Replies
Written by
Bitsy profile image
Bitsy
To view profiles and participate in discussions please or .
5 Replies
quirkyme profile image
quirkyme

my husband has sleep apnea, is that what you mean? He's supposed to use a CPAP but now

just sleeps on his side and doesn't have his obstruct and stop breathing. He had it years before he was diagnosed (also constipation from childhood and other symptoms).

Bitsy profile image
Bitsy

No that is a different condition that doesn't lead to Parkinson's disease as far as I am aware. It can be distressing to wear a CPAP but I would encourage your husband to wear it, you get used to it - my mother did.

Rapid eye movement sleep behaviour disorder is when you lose your body paralysis (known as muscle atonia) during sleep and so act out your dreams. Cheers

partypants profile image
partypants

Hey Bitsy - just came across your thread and thought you might be interested in the latest research linking sleep disorders and PD. No indication of anyone reversing it though, rather it seems that it's a precursor to getting PD.

I started a thread yesterday on this - healthunlocked.com/parkinso...

Bitsy profile image
Bitsy

Hello party pants, thank you for the link. Yes, I am aware of the implications which are simultaneously interesting and depressing. Most people I think are looking for that window of hope. Not everyone gets RBD and I don't know if that means we who do fare worse or not. I have realised Parkinson's disease is about challenge. It will always be with me but I have to out pace it and the minute I stop doing that, it will out pace me! Cheers

Bitsy profile image
Bitsy

Thanks Osidge I was taking 1mg of clonezepam initially but reached tolerance level after 12 months and so discontinued it because it also caused depression for me. I then tried 5 mg of melatonin which gave me nightmares and made me sleep walk which have stopped since I discontinued it. Presently I am on nothing but making sure I am getting all my vitamins naturally (i.e. diet) especially B, C and D vitamins, folate, glutathione and K2 as well as resistance exercise and my symptoms have notably improved. I also balance my omega 3 and 6's with a Paleo diet, cut out gluten and sugar. You might like to read the article I posted recently on the importance of folate for treating Parkinson's. Cheers

Not what you're looking for?

You may also like...

Anyone else dealing with Rapid Eye Movement Behavior Disorder? I am trying to learn more about preventative measures.

Anyone else dealing with Rapid Eye Movement Behavior Disorder? I am trying to learn more about...

Dopamine Dysreggulation Syndrome . I am looking for anyone who has this . As this as part of there diagnosis.

Hi I HAVE HAD PARKINSON'S FOR 18 years FOR 14 YEARS THE DRUGS WERE ON TAP . AT ONE POINT I WAS...

Has anyone experienced the "dry heaves" as a side effect. I take sinemet and azilect for my PD

I have developed hot flushes over the last 2 years since I was diagnosed with PD. My consultant doesn't think it has any link. Any comment

Anyone else suffer like this? It is really uncomfortable and embarrassing. I am 63 so it is too...

Has anyone else considered isolated soy protein as a potential catalyst for PD? I consumed large quantities of this in soy energy shakes.

I googled "isolated soy protein and Parkinson's" and discovered research linking the two. I...