Need help, advice: I have excessive swelling in... - Pain Concern

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Need help, advice

pratyaya_23 profile image
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I have excessive swelling in both feet, around ankles and upper part of feer and pain in heels. Pain in all joints, swelling stiffness in hands. Difficult to hold things. RA factor is negative but even if it is negative, but its seronegative RA. Anyone else having same. Any help or can share ur experience. Thnx

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pratyaya_23
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I was diagnosed in 2017 with ANCA associated Vasculitis but months before the diagnosis, I had the same symptoms as you describe. It is also known as GPA or Wegener's disease. It's fairly rare and and 4 different missed it and it got so bad that my kidneys failed. There is a blood test for ANCA and I would have the doctors test you for it. If it's negative, GREAT! But if it's positive, you could save yourself a LOT of grief.

pratyaya_23 profile image
pratyaya_23 in reply to

Thankyou so much!! I'll talk to my GP

in reply to pratyaya_23

Please don't let them dismiss your concerns. It happens all too often.

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