Pain and suffereing

[donna19]

Not going to let it get the better of me anymore

[Suzyhayes]

Every day I consider whether it is better to live with pain or to let it beat me and just die but I choose to live and hope one day I will find some pain relief. Don't give up hope. What is the nature of your pain and how do you cope. I find looking for distractions help a bit. Chin up.

[donna19 in reply to Suzyhayes]

Hi i had a bad whiplash which was near on 3 years ago now it has gone down my spine round my ribs and down my left arm some times my head feels like its going to drop of my shoulders lol . I was like you still am really . I was suicidal a while ago really had enough . I have had to give alot up which we grieve for .i think untill you have done that there is no moving forward . I know when to stop now and what my limits are to a certain extent even though sometimes i forget like we do . Then its ouch goah that hurt lol. I am glad you have found a way out i hope you enjoy what you are doing makes things more bareable do you not think ? Thinking of you

Donna x

[judyskagit]

Hello Miss Donna19. I really appreciate how you have used your talents and patience to create this amazing project. It takes so much determination and hard work to stitch something huge like this. You Go Girl!! Pain, move over, Donna is charging through!! I am so proud of you... Judy You have inspired me to get moving on a hat I am knitting in my mind. I seem to be my only obstacle. Stupid Bummer!

[donna19 in reply to judyskagit]

Hi thank you if i can do it any body can you must have the determination to do things . I have not really been able to do alot i was told no to everything i craved for . So when i started enjoying this i was damn sure pain or not i was not stopping for nobody i do suffer for it terrible somedays but hey its everyday life now .so if you are going to suffer make sure its given you some pleasure first it makes it more bareable . Would love to see the finished project if thats possible x thinking of you donnax

[Steve49]

Hi.

Yes that is the spirit, we have to keep going & not let it (Pain) beat us. One day they will find something to control our Pain.

I have been referred for some "Deep Brain Stimulation"

But the NHS won't Fund it "GREAT" !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

"Bar Stools"

I have tryed "Cognitive Therapy"

This is where we find something to distract the "Brain"

I currently use "Music" as my first one. I find Relaxing Music does the trick.

Also working on "PC's"does distract the "Brain" away from the "Pain"

"Distraction" seems to be the name off the game for me !!!!!

Steve.

[Hidden]

very nice donna well done i'm doing jigsaws and making models to keep my brain working xx

[donna19 in reply to Hidden]

Thats brill i hope you enjoy and do not suffer i have took months to do that cross stitch but its for my brother plus its the only thing i have found pleasure in and can physically do even though i pay for it . What ever you do it must be theraputic hope you are ok x

[Hidden in reply to donna19]

did start it on the table then the rugby world cup started so ive been watching all the games iam reading a lot to occupy my mind reading a book a week

[donna19 in reply to Hidden]

Reading is relaxing you can get lost in another world not your own lol . I only read on holiday have you a kindle or loads of books everywhere lol. We have not seen much rugby but hear the games have been good x

[littleeffie]

Wow.That's lovely.Well done.8)

It is sooo hard to give up things you enjoy and achieve so adapting or finding another positive is the way to go.

My lifelong "thing" is motorbikes. I had to add another wheel ,trike, a few years ago to keep going as lost the strength to stay up on two.Then got nerve injury in arm and hand so can't stand vibration in handlebars so for the foreseeable ,although not giving in to never,can't ride .So my hubby bought a wreck of a bike and I have spent a few minutes here and there taking apart, one handed,the whole thing and after two years I am now on the rebuild!Using one hand and hurting like hek it will probably take me another two years to get running but it keeps me focussed and seeing what I have achieved already stops the "I am useless" demons creeping up on me.

I will post pic when finished but it won't look as good as that bus,love it!

I do think doing something which gives you a visual achievement very helpful in life pain or not.

Hoping for a good week ahead for everybody.

[donna19 in reply to littleeffie]

Wow you sound very strong its great to hear you have a focus its hard when your arm and hand hurts i get that its hard to hold things even lift a cup o tea to drink sometimes . I bet your bike will be great as long as it keeps you focused the better onwards and up it is very hard to adjust its like loosing part of yourself .you should be proud and for your hubby to encourage you well hang on to him lol . Have a great day xx

[littleeffie in reply to donna19]

Grr just lost post.

Thanks.

Yeah hubby is great .He thinks I am far too strong, think he means stubborn, for my own good.

Had Ehlers Danlos pain since childhood then Lupus, fibromyalgia, Rheumatoid Arthritis then thyroid cancer but the more recent brachial plexus injury and following CRPS were the culprits that nearly toppled me.Still learning to get head round those in a shut off and cope way but life is a learning curve .

Await pics of your next masterpiece!

Take care and stay strong.

[donna19]

Gosh you have had it tough hun are you made if steel be great if others coyld thrive of your strong will . Bless you . You have to keep going now just to prove a point hey lol. Well done you . We all think we are week its like being afraid of the unknown untill it hits you you realise how you have to change to the change if that makes sense . You amaze me . Take care . Enjoy your day x

[teadrinker]

Love the cross stitch Donna, the wheels are amazing! I do knitting, anything so long as it's a scarf or very small!

[donna19 in reply to teadrinker]

Thats brill im glad you have some joy and you can see the end product its a great achievement alot of people crochet blankets . Keep going hun you will get there xx

[Sazntef]

Distraction techniques are great, stops the depression some and fills the time too. I've been playing with wire jewellery for a while now, loving it. Sometimes the pain in my hands gets too much to work worth it, but thankfully isn't too frequent so far.

[donna19 in reply to Sazntef]

Yes depression oh gosh it takes over everything . Its tough but to concerntrate while in pain is a task and half just do what you can be great to see some of your work i love pretty things . Take it easy and enjoy xx

[Sazntef in reply to donna19]

Yes, the concentration doesn't come easily. I'm very sure that if I didn't throw myself into my little hobby, I would have given up long ago with the constant battle against pain. Working just now and all I want to do is have a lay down to take the pressure off my back, but still a couple of hours of meeting left. I'm just too stubborn to give up work, even though it increases my pain. I do have a great employer who lets me work from home whenever I need. Also understand when I have appointments.

If you wanted to take a little look, I have a facebook page where you can see some of my jewellery Donna, Is under facebook.com/dizzydrakes. Hope that you like it.

You take care honey

Sarah

xx